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Starting Tymlos..
I tend to overreact to meds and often get the side effects. I do better if I start with a baby dose and work my way up. What would be a good dose to start with? I will have the first dose in the doctor’s office. Do I understand correctly that this is done with how many clicks you give it?
I already have heart palpitations and take a beta blocker for that , starting half a year ago. I am thinking I can up the dose of the beta blocker if I get increased palpitations. Anyone else given a beta blocker to manage palpitations?
One last thing. My calcium level was abnormally high, despite my hyperthyroid numbers being normal. The Dr ordered additional tests to rule out some other things and I haven’t heard back yet. Has anyone else had high calcium without being on a med that caused it? I can’t start the Tymlos till this gets sorted out .
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Tymlos will raise your calcium level briefly. There are other posters on Mayo who have dealt with this. Also I took 3,000 units Vitamin D while on Tymlos, more than usual, and my levels stayed the same.
Why are you having it in the doctor's office? Not sure anyone at the doctor's office will do a lower dose. Maybe.
There are 8 clicks on the pen. You can start with two or one if you are really nervous. I have atrial fibrillation and while on Tymlos went the entire two years without any afib.
Your doctor can guide you on dealing with palpitations but I did not need to medicate heart issues while on Tymlos.
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2 ReactionsThank you for the reply. It’s this doctor’s standard procedure for starting Tymlos, to check for any problematic reaction.
I wonder if anyone had high calcium without being on the drug, and if so, what caused it if they know.
@daisylou a few people have posted on this- high calcium before Tymlos. Maybe you could start a thread so they can see the question?
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1 Reactiondaisylou,
Tymlos can cause palpitations, rapid heartbeat and dizziness. PTH dilates your blood vessels causing blood pressure to drop and causing the heart to beat faster to ensure blood circulation. You can alleviate the effect by staying hydrated thereby increasing the fluid levels in those expanded blood vessels. Because salt constricts blood vessels you can lessen the parathyroid hormone effect by having a little salty snack before injection.
The effect is immediate and begins to resolve immediately, but slowly over the four hours after injection.
Normal parathyroid levels and high calcium usually indicated hyperparathyroidism. It isn't easy to diagnose.
The best manner of detection is imaging of the parathyroid gland.
Your doctor sounds really good. Talk with them about the lower dose. I'm not sure if it is mainstream yet.
I hope you have a good experience and that we get to hear about it. It's such a good drug.