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Autonomic Dysfunction

Brain & Nervous System | Last Active: Feb 6 9:38pm | Replies (12)

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@gloaming

I can only imagine what it's like to be so afflicted, but the concussions are especially worrisome. I know you have heard all the jokes about wearing a motorcyle helmet when you're on your feet...

You give the impression of being somewhat upbeat, your condition notwithstanding. Atta girl!! 😀

Do you have a protocol for standing? My wife gets woozy spells, and I keep reminding her to sit on her bed for a few seconds, do several semi-rises and then sit again, try to get her blood pressure up, and to see if she feels unstable. That does a pretty good job, and it can be done when seated at a table or relaxing watching TV or at a desktop computer, as examples of other circumstances.

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Replies to "I can only imagine what it's like to be so afflicted, but the concussions are especially..."

I’m ADHD & move too fast from bending over & straightening up to walk away…that’s when trouble sometimes strikes…As you’re well aware ANS symptoms seldom warn the person - and they happen fast!
I’m along for the ride, on my feet or off…I can pause, breathe and next thing am flat on my back or a face smack!
I have a short-circuit between feet and central brain of 7 seconds [found in testing] and a short circuit in my neck. They haven’t figured that out but sometimes I turn my neck and blam! Out like a light!
There’s no apparent fix.
So. For me? I start my day with gratitude and mindfulness so that people around me see Me - not my “condition(s)”. I’ve never been a ‘poor me’ personality - I had 5 siblings - who had time? Then raised 2 sons as a young widow. I’m like the EverReady Bunny: just keep going!😊Blessings to you & your wife. 😊