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Autonomic Dysfunction

Brain & Nervous System | Last Active: Jan 19 8:40pm | Replies (9)

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@gloaming

I can only imagine what it's like to be so afflicted, but the concussions are especially worrisome. I know you have heard all the jokes about wearing a motorcyle helmet when you're on your feet...

You give the impression of being somewhat upbeat, your condition notwithstanding. Atta girl!! šŸ˜€

Do you have a protocol for standing? My wife gets woozy spells, and I keep reminding her to sit on her bed for a few seconds, do several semi-rises and then sit again, try to get her blood pressure up, and to see if she feels unstable. That does a pretty good job, and it can be done when seated at a table or relaxing watching TV or at a desktop computer, as examples of other circumstances.

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Replies to "I can only imagine what it's like to be so afflicted, but the concussions are especially..."

Iā€™m ADHD & move too fast from bending over & straightening up to walk awayā€¦thatā€™s when trouble sometimes strikesā€¦As youā€™re well aware ANS symptoms seldom warn the person - and they happen fast!
Iā€™m along for the ride, on my feet or offā€¦I can pause, breathe and next thing am flat on my back or a face smack!
I have a short-circuit between feet and central brain of 7 seconds [found in testing] and a short circuit in my neck. They havenā€™t figured that out but sometimes I turn my neck and blam! Out like a light!
Thereā€™s no apparent fix.
So. For me? I start my day with gratitude and mindfulness so that people around me see Me - not my ā€œcondition(s)ā€. Iā€™ve never been a ā€˜poor meā€™ personality - I had 5 siblings - who had time? Then raised 2 sons as a young widow. Iā€™m like the EverReady Bunny: just keep going!😊Blessings to you & your wife. 😊