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@1990mom

Thanks! Yes, he is very distraught. He has 3 small children and no family close so all of us parents are staying in 2 week timeframes to help out. Looks like the closest Mayo Clinic would be in Arizona. Appears they have a lot more diagnostic services than are available here. While he hates to leave his family, I am encouraging him to go find out a cause if possible and not just treat the symptoms. Any suggestions would be appreciated...he and his wife are trying to be patient with the slow process here but as a parent, I feel the longer he takes these medications that affect the brain, the worse off he will be.
Thanks again!
Deb

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Replies to "Thanks! Yes, he is very distraught. He has 3 small children and no family close so..."

I will make it a priority this afternoon to contact Mayo in Jax to try and get some directions for you and your son. I will update you ASAP with what I can get from them.

@1990mom - really hope your son does decide to aggressively pursue finding out what's causing his symptoms. I'm sorry to hear he's distraught. Understandable.

I hear you on parenting an adult child you cannot "make" do anything. My children are 16 and 18, and I'm getting a strong dose of that with my 18-year-old. Almost easier when they are 8 and you can just tell them what they are going to do.

How is he doing? Has he experienced any more seizures?

My son had a sudden onset at 17 (not quite an adult). We are lucky enough to live in AZ and after not feeling great about the original neurologist we saw in town, I was able to get him in to Mayo neurology. The first thing they did was get him into their epilepsy monitoring unit. We still don’t know the “why’s” but they do have him on the correct medicines and he has now been seizure free for 13 mos (when he started was having grand mals weekly). I love the neurology team at Mayo in AZ.