@lilacs777 I would think the risk of primary in the other breast would be low with meds. Their function would be preventative. Wouldn't "recurrence" be only in the original cancer breast> Did your doctor imply that cancer from one breast can spread to the other?

I had a second mastectomy a couple of months after my first. We have a right to symmetry, legally. If you find you are very worried about the other breast, that is always an option. (Mine had cysts but also pre-cancerous dysplasia).

None of us have any certainty about anything. Risk for hormonal cancers actually continues to rise, but the meds really help. I hope you can discuss all this with your oncologist! Let us know what you find out!

Hi @lilacs777
So I even have BC recurrence and can't answer all your questions because it is confusing and even my oncologist has thrown out different scenarios. I had a double mastectomy in 2013 (I think I accidentally put 2011 in another post). Stage 1, 7 mm found on routine mammogram, ER/PR+ HER2- with BRCA2 and CHEK2 mutations (although we didn't know about CHEK2 at the time). I had the DM and because I would be a slow metabolizer for Tamoxifen, I was advised there was an alternate med, but my oncologist said I had almost no chance of recurrence so skip the hormone therapy due to potential side effects. I didn't have reconstruction, no regrets.

7 years later I found a hard, immobile painless lump on my chest that felt like a marble. It was recurrent BC in the chest wall and muscle. No mention of skin as you asked above. It was 1.2 cm. I am listed on all paperwork as having advanced breast cancer that is incurable but treatable. My cancer is 3x as aggressive as the original with the Ki-67 at 50% this time and even higher hormone scores. My onco told me there is a small possibility it's new cancer, but most likely recurrent. I had the tumor removed including part of the muscle, there was a positive margin in the muscle, had 37 radiation treatments and have now been on Kisqali and Letrozole for 4 years. No sign of BC on my every 6 mo. CT scans, but then again it takes millions of cancer cells together to show up on a scan so who knows. The cancer came back so aggressive, he thinks cancer cells likely got away before the surgery and we also don't know if radiation took care of the positive margin. I can't do chemo because of my rare hereditary neuropathy, but he doesn't think chemo wouldn't work on my current cancer anyway. Bottom line is, I'm still here, doing well, enjoying life. All my challenges are from the medication side effects, not the cancer itself. I never had any cancer symptoms other than the lump both times (first time I didn't feel it).

My original surgeon who saw me 20 times in the 7 years before my recurrence acted surprised I wasn't on hormone therapy and said it would have cut my recurrence risk in half. She knew all along I wasn't taking it per her oncology partner's advice. If I had to do it over again, I would do the hormone therapy. I hope my current BC meds continue to hold any remaining cancer at bay for a long time. The plan is stay on the same meds indefinitely as long as they work. I have a whole collection of medical issues as do many people on Connect including another cancer, but life goes on. Medical stuff takes up a lot of time each month, the new normal, but I use the other time to live and enjoy life!

My best advice to you is take any necessary precautionary steps to avoid and identify recurrence, do your monthly self-exam, and then just live your life and put cancer thoughts on the back burner. Don't let worries about the future steal today's joy. I start every day saying, "Today something good is going to happen to me and through me. Who can I bless today?" It makes me notice the smallest blessings each day and notice opportunities to bless others. It's a great way to stay upbeat and make every day count. I hope my story helps you in some way. Many blessings, Zebra