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CSVD

Brain & Nervous System | Last Active: Jan 20 4:25pm | Replies (19)

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@keithl56

I was diagnosed a few years ago. What is your age and symptoms?

CSVD can be age related and as we get older everyone will have some degree of CSVD. I assume that you have had an MRI to arrive at the diagnosis. Did it specify what areas of the brain are affected and whether it is mild? Did it show any lacunar infarcts and whether they are chronic or acute? Are you asymptomatic? Do you also have CAD?

I'll be happy to share my experience with CSVD. A diagnosis of CSVD can be rather innocuous so there may not be too much to be concerned about, especially since there is no treatment any for CSVD at this time.

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Replies to "I was diagnosed a few years ago. What is your age and symptoms? CSVD can be..."

Hi Keith

I’m 73. MRI wasn’t done for CSVD but for a glioma in the tectal plate originally ‘discovered’ in 2020 and had had no further MRI’s since then. That MRI didn’t show sign of CSVD.

So saw a neurologist who
compared my new MRI to the other one and said it was nothing of significance and wasn’t sure it was a glioma.

However he showed me the CSVD. I know morning about brains and all I can say it looked like 3 white dots on the left side and 3 on the right side. He said it was mild-moderate. I now wearing a 24 hour monitor for my blood pressure and he may have to increase/change my meds.

I can’t answer your other questions sorry.

Have been freaking myself by looking it up and imagining the worst!

Symptoms - not sure. I’ve suffered for years from anxiety and depression but don’t think it’s related? Otherwise nothing else I can think of.

Please share your story but be kind!

Thanks

Hi Keith,

I am 48 yrs young and just been diagnosed with chronic CSVD after an mri scan - i have no symptons but am currently having tests to ID the cause as the usual risk factors- bp/diabetes smoking overweight does not apply to me im fit and healthy. I have had a number of bloods and an ecg-im awaiitng a 48hr bpmonitor ans ecg but as they say they cant reverse the damage impetrified of the cognitibe impairment side later or in the near future- im such a young age and have no idea what this disease holds for me - sorry to hear about yourself -