@stfnwtl89

Welcome to Mayo Connect. I am a Volunteer Mentor and not a medical professional. We don't make medical diagnoses nor do we give medical opinions. We do offer our own experiences with medical issues in order to give others alternatives to their personal medical choices.

As an older adult (68 yrs.old at the time) I was put on several pain medications for chronic back pain that became acute pain in October, 2016. I am already taking Citalopram (SSRI) to which my pain doctor added Gabapentin, Baclofen, and Tramadol. I was also given a prescription for Valium to take before my back surgery in December, 2016. I continued to take these medications until I was beginning to feel better as a result of a new physical therapy I was trying called Active Release Therapy (ART). When I told my pain doctor I wanted to stop taking the Gabapentin (600-900 mg/day), he seemed to be mad at me and asked me why. I told him I didn't like the way I felt on it, couldn't think straight and was losing large chunks of memory. (In fact, I thought I was getting Alzheimers it was so bad.) When he said I could just stop taking it, I said I had read that you can have withdrawal symptoms if you just stop it. He laughed at me and said impossible. Then I got a lecture on what was "withdrawal" and that I could only have that from opiods, not Gabapentin. However, I had read on Mayo Connect about the problems withdrawal from Gabapentin caused people. I then called my pharmacist who gave me a withdrawal schedule and confirmed that it was difficult to withdraw from. I successfully withdrew over 2-3 months time. I also withdrew from Baclofen at the same time toward the end of the 3 months. I discovered that my pain improved as I withdrew from the Gabapentin.

I was still taking Tramadol 50mg 4x day until November, 2017. I talked to the pain doctor about withdrawing from it as well, and he encouraged me to do that. It was much harder do withdraw from, and I still have some issues that I attribute to withdrawal. It has taken me 3 months to get off the Tramadol. I found that CBD Living Water and drops helped with my anxiety during withdrawl at the beginning. CBD is from marijuana and is the part of the plant that doesn't make you high. It helped me relax and relieved anxiety. I no longer use it. My pain doctor cut the number of pills in my prescription to 3 a day, and I began cutting those in half as I was going down in dose. I just got a refill of Tramadol and asked the doctor's office to only give me 30 pills as I would only need them now if I have acute pain, which happens only occasionally if I overdo it. However, they gave me the 90 pills again. If I was still feeling addicted to Tramadol this would have been a detrimental thing for me. Fortunately, I have just put the pills away and will not take any unless I really feel pain. Even then, I will only take 1/2 a pill.

It is hard to believe that pain doctors, especially, don't want you to get off drugs. Knowing what I know about Gabapentin now after taking it, I would recommend anyone taking it to withdraw, but that is only my experience. Others may find great help with it. What I have learned is to pay attention to my body, and if I think there is a problem with what my doctor tells me, find another source to investigate the information. I have successfully withdrawn from my medications, but I wasn't taking them for many years.

I recommend that anyone withdrawing from opiods/benzos talk with your doctor, but also with your pharmacist about what they recommend as a withdrawal schedule. If you are having withdrawal symptoms that are too much, go back to your previous dose, and take it slower. None of these drugs is easy to get off,and it takes a long time to do so. Take as long as you need, many months, and cut your doses in half or by quarters to help you with the slow withdrawal. By all means I recommend from my experience, try CBD to help with the anxiety you will feel. It is not addictive and if it's legal in your state, I found it very helpful.

I agree with you that in their efforts to find a way to help relieve pain, doctors have gone to the extreme in prescribing opiods as an easy "fix". I watched my older brothers go from light use to morphine and oxycontin, and now methadone in the pain doctor world. We have genetic back disease, but just treating the pain with medications isn't where things should stop. My discovery of ART has relieved my pain almost completely. I have pain but it is bearable, and if needed I take Tylenol first (following instructions), and that usually works. My youngest brother has gotten off oxy after many years of taking all kinds of drugs for pain. He had back surgery fusing two disks 2.5 years ago and though he still has pain, it's reduced and he's living with it.

I think we've all, including doctors, been misled about opoids and benzoprines. Money is a strong driver of corporate actions, and I believe that is the case here. I know to listen to my body and be very careful what I put in it. Doctors, pharmaceutical companies, and pharmacists are human beings. As such they make mistakes. In my opinion, our mistake can be listening to their advice at the expense of our own intuition about our bodies. They do the best they can,and I must do the best for myself as well.

How have you been handling your family member's withdrawal symptoms now?
Have you spoken to any pharmacists about helping with the schedule of withdrawal?
Please let us know where things are with them and with you. Thank you for sharing your thoughts and frustrations with us. I hope my experience is helpful.

Warm regards,
Gail B
Volunteer Mentor

We have tried working with pharmacy and dr and even hospital dr says if can't work thru withdrawal he is going to refer elsewhere, pharmacy only fills the prescription and seems judgemental because the regiment of prescription keeps changing. The last 2 months have been awful, heartbreaking and frustrating. We've been going to dr. every 7 days and nothing is working. We are talking 10+ years of benzo and opiods for chronic pain mgt, I want to help desperately but there seems little to know help and no answer just more questions and more medicine combinations. I wonder how much more a body can physically and mentally take.

@stfnwtl89, I recommend that you try to get an appointment with a Mayo close to you. They have many good programs to address pain and withdrawal. The withdrawal process takes a very long time, as much as a year. Also, some people are on these medications because they truly need them. Its possible that your family member will always need these drugs. My understanding is that our bodies and brains change when we take opiods. The opiods replace the normal pain reactions in our brains, and it takes time to rebuild those brain pathways to handle pain normally. That's why we become addicted to the drugs. That's why it takes a very long time to slowly withdraw from them.

I don't know what your doctors are doing that is causing you to have to see the doctor every 7 days, but it indicates to me that your family member is trying to withdraw too fast. To do that requires hospitalization and medical help. I actually don't think that's a good way to withdraw. My brother did that twice, and ended up back on the oxy shortly after each time. The last time, after his back surgery, he decided to withdraw slowly. This time it has worked and he's been clean for about 2 years now. He was on these opiods for over 10 years as well.

I hope you find relief for the situation. Perhaps others on Mayo Connect can tell you more about the withdrawl programs through the Mayo Clinic.

Gail B
Volunteer Mentor

Thank you for speaking with me today and I really appreciate this site, I just checked and the closest mayo clinic is 212 miles away which is not out of the question but would definately take some planning on my end as I am caretaker for both of my parents. Not out of the question just wish there were closer options. We are going to the Dr. every 7 days because he keeps changing her medications due to reactions and pain level response, I suggested 2 weeks was too long with all the adjustments being made because the withdrawals start immediately anything less than 1mg of xanax 3xd has the following effect. Day 1 mindset is this can be done stays up listening to gospel music, Day 2 can't sit still, will not be able to sleep and internal itching begins, speech is rapid and thoughts are scattered zips from this to that organizing, cleaning and all over the place, stays up listening to gospel music for therapy again no sleep Day 3 by 10am mood starts changing irritation, journaling begins to relieve anger building by 12-12:30pm full blown anger at everyone self, dr.'s, family and so on. It progesses to day 4 paranoid, people are trying to hurt etc. no sleep again, day 5 gets out of control and the past couple of times wound up at hospital ER which none of the hospitals seem to have adequate treatment for this as I stated earlier Bradford is not the place for someone with Chronic pain, day 6 we make a flying trip back to pain Dr. who is aware of all the symptoms and what has transpired but has other patients and can't work you in until today, then we explain too much has been taken away at 1 time and the dosage is increased but then something else is decreased or removed, effexor was removed this past time and percocet was increased and xanax was decreased from 1mg 3x per day to .5 mg 3x per day. We are on day 3, this time the follow up appointment is for 14 days, that will never happen. I don't see making it through the weekend unless approval from Dr. for increase in dosage which will not happen because he is out of town and noone is there taking calls and he is not affiliated with any hospitals. The weekend will be rough and if lucky maybe Monday there will be a trip to the hospital but they will want to admit to geriatric psych unit which will want to remove all meds and start fresh with depakote and effexor. I also believe the Dr. is trying to wean someone who has taken benzo's and opiods for 20+ years too soon and I am not sure at 68 if it is such a good idea for full removal. Over the course of the last 2 months the same thing keeps happening and 1mg per day seems to be the correct dosage I feel that the Dr. pulling too much to soon but he will not listen. Over the course of 3 years the dosage has tapered at one point a dr. not this dr. had the dosage at 8mg. I believe the dosage was 4mg and since December has tapered to 1mg so there is improvement but this 1mg to .5mg in a 7 day period is not working like I said this is the 4th time it's been tried and the same reaction. Other meds are involved but I know the xanax is the main issue.

It sounds to me like a good personal physician needs to intervene and look at all sides of issue. I can't believe a pain mgmt. Dr. is prescribing benzos and Gail may be correct. sometimes complete withdrawal is not the answer. Is the family member on any kind of oxygen or have they had any breathing problems? My taper schedule for benzos was 6mg to 5 mg to 4mg and that is where I am now. I expect to go down about 1 mg/mo. from here forward. My opioid level fluctuates based on the condition of my pancreas, but is fairly low right now. It is not fair for me to say the pain mgmy Dr. should not prescribe benzos because I am not a Dr and don't have the knowledge to make that statement.