I appreciate all your good information, experience and concern regarding this issue. Unfortunately, there are none in my area, and I would have to travel far away yo find one. I was seeing a epileptologist, over 3 years ago, but he only saw me one time and then pawned me off to a PA. The PA was not knowledgeable or had any fellowship in the field and nearly killed me by prescribing things that only made my condition worse, I nearly died from negligence and malpractice. It was awful. I went a year waiting for someone to take the case that was more qualified, however, I dont feel like he understands, or hears my concerns. There is a shortage of neurologists in the area where I live and, it can take over a year and a half to get in somewhere. It is a very bad situation, and I am disabled because of it, so insurance will not allow me to ho out of state. What do you do when you can’t find somebody that is an absolute professional and knowledgeable in the field, and there’s nobody here to be able to fill that void. There are so many people waiting to see somebody and they cannot even get in. I will not stop taking the medication on my own, but I want a better life, and I feel like this medication has made my medical situation even worse with new symptoms that I never had before, and then a doctor saying that absolutely can’t happen, which we both know can. I have read in multiple areas that AEDs can cause issues with the heart. I even spoke with Albert Jung of Langone, getting his input and he verified what my concerns were. He said get another opinion. It makes it very difficult because there is no one else here. Where do you go when you don’t have the doctors to go to?