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@laree

Thank you for that. I didn't think insurance would alter things. It sounds like a cluster.
Only 1 net specialists in my area is coming up on the LECNETS site I think it is. I have other referrals but that look like they might be net specialists but they sure are not on the NET site.

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Replies to "Thank you for that. I didn't think insurance would alter things. It sounds like a cluster...."

@lar23
Here is a link to another listing of NET specialists, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

A second opinion is often allowed by insurance companies. It would be worthwhile to attempt to get another opinion from a NET specialist.

Will you post again?