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Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (5)

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@stevestenberg31

I agree with the comments above. Get a NET specialist ASAP. The facts cited by others like grade etc matter. I will add that your insurance matters too and the course of action may be influenced by the insurance company, Hence important to have a NET oncologist that can help navigate this. I did have surgery to remove SINET, GB, cancer lymph nodes 5 months after diagnosis but only after a blockage, ie emergency as this is not what the insurance will approve at first. Since you are Stage IV you may get similar resistance from insurance.

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Replies to "I agree with the comments above. Get a NET specialist ASAP. The facts cited by others..."

Thank you for that. I didn't think insurance would alter things. It sounds like a cluster.
Only 1 net specialists in my area is coming up on the LECNETS site I think it is. I have other referrals but that look like they might be net specialists but they sure are not on the NET site.