My story living with stage 4 prostate cancer

Posted by stevecando54 @stevecando54, Mar 21, 2024

My story living with stage 4 prostate cancer

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@albert785

Do me a favor. I am 71 and back in the day all you heard about chemo was how sick it made you. I have to work to be able to live. If I didn't work I would have no where to live and nothing to eat. I refused chemo and opted for Eligard, Zytiga and Prednisone.
Tell how chemo really was to you. Could I stay working? Would I really be sick most of the time? I know nothing about chemo but I do know that they tell me that when my cancer wakes back up that I will probably go down hill quick and when that will be depends on luck.

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I had 10 treatments. On day of treatment, always on a monday, I of course took the day off. Didn't miss any time other then that. I work on my feet, doing maintenance work. Everything slowed down but I could still do my job. It wasn't always fun but you just push forward. Just know you can do this, not always easy but you can do this. I didn't get sick, sometimes hard to eat, I would drink energy drinks a lot of times to keep weight on, and eat things that would slide down instead of trying to chew. It does mess with your taste buds. I wish you the best on your journey, fight on. Best to all.

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Thank you very much for your comment. I know the just push on already. I too work on my feet, I am a flagger for construction and accident control. My longest day this year was 26 hours. The cancer is in my pelvis and spinal chord. I worry about chemo taking away my quality of life. I hope my luck keeps coming and I get a few more good years. I heard a girl say once: I can't wait for good things to happen to be happy. Thank you again.

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@albert785

Do me a favor. I am 71 and back in the day all you heard about chemo was how sick it made you. I have to work to be able to live. If I didn't work I would have no where to live and nothing to eat. I refused chemo and opted for Eligard, Zytiga and Prednisone.
Tell how chemo really was to you. Could I stay working? Would I really be sick most of the time? I know nothing about chemo but I do know that they tell me that when my cancer wakes back up that I will probably go down hill quick and when that will be depends on luck.

Jump to this post

Look up Pluvicto. Newest drug out there. My sis had 4 chemo sessions for Lymphoma- it’s in remission now. She does ADL with little problems.

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@ecurb

Look up Pluvicto. Newest drug out there. My sis had 4 chemo sessions for Lymphoma- it’s in remission now. She does ADL with little problems.

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Yes, cutting edge medicine. Someone also mentioned excellent results with Doxacetal (sp?) with not too many side effects, surprisingly. Might be a good choice if you absolutely have to be out there working.

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@albert785

Do me a favor. I am 71 and back in the day all you heard about chemo was how sick it made you. I have to work to be able to live. If I didn't work I would have no where to live and nothing to eat. I refused chemo and opted for Eligard, Zytiga and Prednisone.
Tell how chemo really was to you. Could I stay working? Would I really be sick most of the time? I know nothing about chemo but I do know that they tell me that when my cancer wakes back up that I will probably go down hill quick and when that will be depends on luck.

Jump to this post

After Xtandu then Radium 223 I did 2 chemo's ,but second one I reacted and got fluid on my lungs and a embolism 8 weeks now on prednisone and soon cleared Embolism gone on meds Next is Zytiga?? Or LU 177 now approved in Ontario as standard of care
80 now Radiated prostate in 2017 On Zolodex and Xgeva plus take 600 mg calcium daily K3 + D3 C and apple cider vinegar

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I've just entered year 5 of living with stage 4 aPC. Love the title of your post. "Living With Stage 4 PC." Few months ago my oncology psychologist planted the idea in my head to "Write A New Chapter in my mind about my aPC Story, this time focus on my survivorship" and then he used the term "Make it a best selling in your own mind." Wow, those words stuck. Thank you for your post. My joy.

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@stevecando54

When I was 68yr old what I thought was a muscle pull in my leg was actually stage 4 prostate cancer. It has been quite the past year. I don't do yearly visits to the doctor which might of caught this earlier but I have no regrets, too late for that. At this point I feel good, still work full time. I had 10 rounds of chemo along with monthly shots of hormone treatment and also bone strengthening shot. I almost forget dealing with side effects of the chemo. I'm presently on Zytiga and prednisone. My biggest side effect to deal with is shortness of breath, pretty sure related to the prednisone. I want to encourage all that we can do this. I certainly have bad days, body doesn't want to cooperate but I fight to keep a good attitude. I do about 10k a day in steps. My job keeps me on my feet and my mind occupied with tasks. I think this is very important to be able to keep pushing on. I really believe if I was to stay in that recliner I would go down hill fast. I keep God on speed dial for those rough spurts that happen. I would encourage people to stay positive and keep up the good fight. thank you for letting me tell my story.

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Hi I read some of your posts and very similar PC journey as my husband; he is today 60 was diagnosed 2 years ago at stage 4 and is on zytiga and prednisone plus Lupron injection; this has been a very difficult time and my husband too has a great attitude and is doing good overall given the PC diagnosis.
I like the post someone else stated I have God on speed dial😎 this is awesome faith is what is helping the love of my life and me and I am interested in connecting with the spouses/significant others of those that are in the same boat as us in supporting our men and it would be great to be able to chat so pls reach out thank you and super impressed with everyone here to include it helps me lots thank you for sharing 🫶🏽

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@stevecando54

When I was 68yr old what I thought was a muscle pull in my leg was actually stage 4 prostate cancer. It has been quite the past year. I don't do yearly visits to the doctor which might of caught this earlier but I have no regrets, too late for that. At this point I feel good, still work full time. I had 10 rounds of chemo along with monthly shots of hormone treatment and also bone strengthening shot. I almost forget dealing with side effects of the chemo. I'm presently on Zytiga and prednisone. My biggest side effect to deal with is shortness of breath, pretty sure related to the prednisone. I want to encourage all that we can do this. I certainly have bad days, body doesn't want to cooperate but I fight to keep a good attitude. I do about 10k a day in steps. My job keeps me on my feet and my mind occupied with tasks. I think this is very important to be able to keep pushing on. I really believe if I was to stay in that recliner I would go down hill fast. I keep God on speed dial for those rough spurts that happen. I would encourage people to stay positive and keep up the good fight. thank you for letting me tell my story.

Jump to this post

Hi there my name is Pete and Im 63. Hardly drink and don't smoke and thru the process I found I have prostate cancer. I will have surgery to remove it in a week and they will check my bladder. We both think alike with great positiveness towards our issues. I'm working up to the day before surgery and will be away from my work for a month I believe. See how I feel and follow the doctors orders when to go back to work. All we can do is live each day with a smile on our face and a happy heart. Take care my friend. I live in Canada.

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@parkerlety

Hi I read some of your posts and very similar PC journey as my husband; he is today 60 was diagnosed 2 years ago at stage 4 and is on zytiga and prednisone plus Lupron injection; this has been a very difficult time and my husband too has a great attitude and is doing good overall given the PC diagnosis.
I like the post someone else stated I have God on speed dial😎 this is awesome faith is what is helping the love of my life and me and I am interested in connecting with the spouses/significant others of those that are in the same boat as us in supporting our men and it would be great to be able to chat so pls reach out thank you and super impressed with everyone here to include it helps me lots thank you for sharing 🫶🏽

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Hello. My husband is 71. Diagnosed a year ago. 4+4, radical prostatectomy + some lymph nodes. The MRI and Pet scan had shown no distant metastasis but the pathology report showed the cancer had gone to the lymph nodes and PSA after surgery showed 3.85. So, since July ADT with zytiga and prednisone + eligard injections. At the same time salvage radiotherapy - all 32 sessions. Cancer is now undetectable and the journey is on. And it is just that: a journey. Take care of him, love him, prepare good, home made meals that are not cancer friendly, push him to do more exercise and the some more (exercise with him!). Walk at least 30 minutes daily together. 30% of recovery / cure is our mind set. Every new day is a blessing. Cancer is never easy but nowadays is not a death sentence either. When I was driving him to the radiation sessions, I was driving by Nicklaus hospital - and I was thinking: there are children with cancer there. And they make it. We are blessed to have access to all the good medicine and the support of loved ones. Reach out whenever you want. You are not alone. Hugs!

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@christine25

Hello. My husband is 71. Diagnosed a year ago. 4+4, radical prostatectomy + some lymph nodes. The MRI and Pet scan had shown no distant metastasis but the pathology report showed the cancer had gone to the lymph nodes and PSA after surgery showed 3.85. So, since July ADT with zytiga and prednisone + eligard injections. At the same time salvage radiotherapy - all 32 sessions. Cancer is now undetectable and the journey is on. And it is just that: a journey. Take care of him, love him, prepare good, home made meals that are not cancer friendly, push him to do more exercise and the some more (exercise with him!). Walk at least 30 minutes daily together. 30% of recovery / cure is our mind set. Every new day is a blessing. Cancer is never easy but nowadays is not a death sentence either. When I was driving him to the radiation sessions, I was driving by Nicklaus hospital - and I was thinking: there are children with cancer there. And they make it. We are blessed to have access to all the good medicine and the support of loved ones. Reach out whenever you want. You are not alone. Hugs!

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Thank you for posting christine25. I am also 71, but my cancer had already spread prior to diagnosis. So surgery is not recommended, started ADT last September and the cancer has responded and my PSA is now very low. My wife is very supportive and cooks healthy meals every day, we also exercise every day. I agree that one’s mindset is so important.

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