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Prednisone cumulative dose in PMR

Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (14)

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@jeff97

An interesting question occurred to me based on this post. I wonder how many people who have achieved remission actually stick around afterwards and keep posting on the forum. One of the biggest motivations for me to follow the forum is to learn about the diseases (PMR and GCA) and their treatments. I want to know what to expect, what the typical problems are, etc. Other motivations are to help other people and to feel less alone, since going through PMR and or GCA can be an isolating experience. So the motivation to be on the forum after remission would be a little different than before.

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Replies to "An interesting question occurred to me based on this post. I wonder how many people who..."

Great question 🙂. My second time with PMR has been in remission since Sept 2018 and I still am following the PMR group along with many others. My interest is mainly in keeping the PMR in remission.

All good points Jeff97
I’m thinking since PMR / GCA are chronic remitting diseases forum participants likely continue to check in , and or contribute , to this forum even if in remission.
As you say an ongoing motivation to help others with their experiences/ knowledge is a consideration too.