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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?
Sarcoma | Last Active: 6 days ago | Replies (30)Comment receiving replies
Had 3 surgeries over 5 years and only got the final fs-dfsp diagnosis after the third. I was referred to the major cancer service in Melbourne, had a wide excision removal. Got clear margins with a smallish deep margin. Follow up every 3 months incl regular scans. Follow up out to 6 monthly after 2 years then to annual. At 5 years I elected to go to a local professor to continue annual review. I am now approaching 10 yrs with no sign of recurrence. No Glivec or radiation.
Wish you well.
Replies to "Had 3 surgeries over 5 years and only got the final fs-dfsp diagnosis after the third...."
@biceto hello, i'm really happy for you
. My doctor thought it was sebaceous cyst on the back of the scalp i got it removed later in the biopsy i found out that it FS-DFSP, before going into wide excision removal i had my MRI and CT scan done which was clear. Got the surgery done 15 days back and now recovering well with wide clear margin and the smallish deep margins 0.3Cm.
Now one of the radiation oncologist suggests that i should go for surgery which im not keen on, but my surgeon is quite confident that he has removed everything even the extra layer under the deep margins. .
Would you recommend radiation? Or anyone?
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Thank you, Biceto!! Your message has given me great confidence in facing DFSP-FS. I am from China, and I just had Mohs surgery on the 9th of this month and am currently recovering.