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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

Sarcoma | Last Active: Jan 18 5:39am | Replies (3)

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@biceto

Had 3 surgeries over 5 years and only got the final fs-dfsp diagnosis after the third. I was referred to the major cancer service in Melbourne, had a wide excision removal. Got clear margins with a smallish deep margin. Follow up every 3 months incl regular scans. Follow up out to 6 monthly after 2 years then to annual. At 5 years I elected to go to a local professor to continue annual review. I am now approaching 10 yrs with no sign of recurrence. No Glivec or radiation.

Wish you well.

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Replies to "Had 3 surgeries over 5 years and only got the final fs-dfsp diagnosis after the third...."

Thank you, Biceto!! Your message has given me great confidence in facing DFSP-FS. I am from China, and I just had Mohs surgery on the 9th of this month and am currently recovering.