1. < Neuroendocrine Tumors (NETs)

Neuroendocrine Carcinoma with Liver Metastasis

Posted by carrie55 @carrie55, Sep 23, 2022

So first of all Hi! I’m Carrie and live in Alberta Canada. Just diagnosed and started chemotherapy for my cancer that started in my bowels and metastasized into into my liver. The doctors say I’m terminal but won’t give me a timeline. Is this normal? And I have another question: are NETS the same as Neuroendocrine Carcinomas? This is what they tell me I have in my liver now.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

amygirl | @amygirl | Jan 4 2:36pm
In reply to @hopeful33250 "Hello @amygirl, Many members have responded to you regarding different treatments for liver METs. Please remember..." + (show)
@hopeful33250

Hello @amygirl,

Many members have responded to you regarding different treatments for liver METs. Please remember that medications to treat cancer do not always result in the same side effects for all patients. If you read the posts about the monthly injections you will see that some side effects lessen over time. Whenever we consider a cancer medication, we need to consider the benefits that can be obtained.

What side effect is concerning to you?

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6 months.

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kaiulani | @kaiulani | Jan 5 12:42pm

Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My most recent PET scan in late November showed further progression to my small bowel and to the right parietal bone. Please feel free to DM me, if you are willing to discuss 🙂

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Moderator
Colleen Young, Connect Director | @colleenyoung | 5 days ago
In reply to @kaiulani "Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My..." + (show)
@kaiulani

Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My most recent PET scan in late November showed further progression to my small bowel and to the right parietal bone. Please feel free to DM me, if you are willing to discuss 🙂

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Hi @kaiulani, I'm sure the November news of further progression was shocking, disappointing and a roller coaster of other emotions. Are you currently on any treatment? Do you work with a palliative care team to help manage side effects?

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