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Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this year. Since the conclusion of the radiation he’s been left completely incontinent. He’s taking orgovyx. Kegals haven’t helped. His urologist wants him to continue with the hormone treatment until January and then test his PSA (it’s currently 0) to determine if he’s cancer free. To tackle the incontinence the urologist suggested a device called ProACT might work for him and could be done in January when he feels everything internal would be as healed as possible. Does anyone have this device and if so, has it helped you, would you recommend? Thanks for any feedback!
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I’m a member of a local support group, and one of our guys issued about insights or experience with ProAct implants for incontinence. Can anyone comment?
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1 ReactionInteresting question. I'd never heard of the ProAct.
I've had an AMS 800 artificial sphincter for 6-months now and am quite satisfied with it.
I did some web searching and found the ProAct web site and it had some reference studies listed. I brought up one and it seemed fairly complete.
So not as to prejudice you or your friend I'll suggest you do the same.
FWIW here's the link to the study I found.
https://pubmed.ncbi.nlm.nih.gov/32249971/
The other studies should provide more info to help you.
Good luck to you, your friend and support group.
bob
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2 ReactionsAbout a year ago, I spent a hour talking with a urologist who specializes in helping people with incontinence. ProACT was not one of the half dozen techniques mentioned. I sure would like to hear more about its use and how people felt it worked.
It’s been around since being approved in 2015, so I am a little puzzled as to why it was not mentioned. I’m actually going to email that doctor and find out what they think about it.
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1 Reaction@lavender560, fellow member @docwatson posted a similar question here:
- Experience with ProAct implants (an AUS) for incontinence?
https://connect.mayoclinic.org/discussion/experience-with-pro-act-implants/
Here's a study from 2022:
- ProACT in the management of stress urinary incontinence after radical prostatectomy. What happens after 8 years of follow up? monocentric analysis in 42 patients https://pubmed.ncbi.nlm.nih.gov/35390245/
You may also be interested in this related discussion:
- Any experiences with Artificial Urinary Sphincter (AUS) or Sling?
https://connect.mayoclinic.org/discussion/longer-term-sling-or-aus/
How is your husband's recovery going?
Thanks for this information Colleen, it’s so helpful to have!
The recovery is going well except for the incontinence issue. Not to sound ungrateful, but this has been mentally and physically life changing for him. I can see the toll it’s taken on every aspect of his routine. We’re very hopeful that a device like this will restore some sort of normality! Thanks so much for checking in. Our experience with Mayo in general was tremendously positive and having access to this forum helps enormously.
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1 ReactionI have a terrible experience with Proact. After 7 months and all of the maximum adjustments, I am twice as bad as before. I was only doing one or two pads before. I should have just gone to Depend Underwear. I don't know what alternative I can or want to do now.