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Thyroglobulin rising post-thyroidectomy
Thyroid Cancer | Last Active: 2 days ago | Replies (10)Comment receiving replies
Hi
Yes you are indeed perfectly normal to question what next.
Your surgeon should be watching your thyroglubin serum and antibodies as they are
watching ine,
Having had a total thyroidectomy and some lymph nodes in my case they are watching the above levels as sometimes used as an indicator of cancer. Mine was papillary cancer.
They always cheap my lungs.
Its just with me my 4th year ultra-sound shows
3 areas of calcification.
Unfortunately the 3 tests were inconclusive. 1 CT scan, 1 PET scan and another CT scan. All with contrast.
I didn't agree to take the endocrinologist advice so I was moved under my surgeon.
Best move for me.
RAI treatment should not be taken lightly - the damage to other organs etc.
Surgery is better.
Lymph nodes can be taken out. That is better.
What sort of cancer?
Did you also have a dissection of the bed of the lobe which contained the carcinoma. I had 12 taken and 2 lymphs were affected.
With me the 2 lymphs are 8mm and 7mm and they have calcified.
Also the 19mm x 8mm also calcified could be my thymus.
My Thyroglubin serum should ideally be below 1. My antibodies stay about 15.
It was 1.5 but after the tests went down to .99 and then up to 1.7. Now down to .99.
I read that between 1-2 it could show cancer growing - either left there or returned. I think that 2 lymphs were left already infected.
The thymus can get cancer in it and the op is serious. I read all about that.
You don't give any indication how your serum is tracking. Please do reply. Today if possible as I am away from my desk in the next 2 weeks approximately.
The Pet scan with RA Iodine Infusion made the ? warm so I had an MRI of that. No brain abnormalities. Also an indocrine organ which converts T3 to T4.
That was great because that surgery is very serious.
How much thyroxine are you taking?
Remember that papillary cancer grows 1mm a year.
Take care.
Also there are 100 lymphs and 50 each side of your thyroid = 100.
cheri JOY. (tuckie)
Replies to "Hi Yes you are indeed perfectly normal to question what next. Your surgeon should be watching..."
Thanks so much for all of this info! I'm sorry I wasn't able to reply sooner.
I don't have any idea why I was not treated further after there was cancer found in a few of the lymph nodes that they removed. Now of course I am very skeptical as to why I wasn't ever even given a better imaging scan than the neck ultrasound. (Maybe there was a MRI at one point, but I think that was for a neck injury come to think on it.) I was told I did not need any further treatment such as chemo or radioactive iodine or anything at all. I was assured that the surgery "got it all". I didn't even think to question my doctor or surgeon on that front. I'm afraid to look it up, but what all happens with radioactive iodine treatment? I would think that I'd have to stay in the hospital for some time because I doubt I could take radioactive stuff home! But I didn't realize it could damage other organs too. For some reason I assumed that iodine would only affect the thyroid or something. Naive, I know.
Currently I'm on 175mcg of thyroxine every day. Until recently I was on 200mcg three days a week and 175mcg the rest of the week. I've lost a ton of weight though over the past year, so I assume why they needed to adjust the dosage. If I'm reading the numbers correctly, the lowest I had was about a year ago at 0.5, then it's gone up slowly but steadily ever since to 1.3 as of a couple of weeks ago.
I'm trying to figure out a list of questions to come armed with when I next see my endocrinologist. Any suggestions? Thank you so much!
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Hi there, I replied to her questions, but mine were not informative but instead was about what we are going through which is why I'm replying on yours because it seems you are further along in your diagnosis. My question: Is taking RAI scans?/pics to rule cancer out just as harmful as the therapy? Reason I'm asking is because my loved had a positive margin on surgical pathology report they have now called to say is "not a true margin" My second reply to the original poster will explain my concern on this matter of wanting a RAI scan done. Thank you!