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Thyroglobulin rising post-thyroidectomy

Thyroid Cancer | Last Active: 2 days ago | Replies (10)

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@mift24

Hi there! Hmm, so even though you had cancer in your lymph nodes you were never offered to have a RAI scan/picture taken? I'm not talking about having RAI ablation/Radioactive iodine treatment therapy just RAI picture taken. You think for some it would be a no brainer to offer this as in my loved one's case and possibly yours. I'm kind of having a hard time trusting what medical professionals say. My loved one's surgical pathology report said a positive margin was identified. Now today, we get a call after we somewhat bombarded them at post-op visit with questions and knowledge we informed ourselves with along with inquiries we had about the positive margin which is now being called "not a true margin" 😒 . At post-op visit with the surgeon, we were told this Mon. he would meet with a team to discuss their case/treatment. I was under the impression treatment plan may came about from that meeting, but instead today we get a call regarding the margin status which they changed as mentioned above to "not a true margin" Hmm, seems a little off to me and a possibly a more negative favorable margin win for them. At post op appt., I had asked can't you go back to try and achieve a negative margin. He explained as to why he cannot go back to the positive incision site to extract more tissue. Now all of a sudden it's a gane changer as far as positive margin. Hmm. You think a scan would had been offered to back up their so called new margin status. Now you can n understand my trust issue.

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Replies to "Hi there! Hmm, so even though you had cancer in your lymph nodes you were never..."

My endocrinologist didn't order any immediate follow-up imaging or anything after they "got it all" during the surgery. I didn't know to question that decision. What does having a 'positive margin' mean? I'm not familiar with that terminology.

Reading other people's posts like yours just is leaving me very...skeptical?...of my own doctors. I've never thought to question whether their decisions were in my best interest; I guess I've always just assumed that. I'm really not too sure now though!