1. < Brain Tumor

Sister has severe head pain 3 years post Meningioma surgery

Posted by 4catmom @4catmom, Oct 31, 2016

Has anyone experienced head pain this long? All doctors throw pain pills at her without any relief. She's suffering and has no life. Any suggestions? I'll take her to a Mayo clinic. Not sure which one is best.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

kimf | @kimf | Nov 5, 2016

My husband had surgery in July to remove what we thought to be a shwanoma tumor but turned out to be a Type 2 Meningioma. The surgery was done at St Vincents hospital in Los Angeles by Dr Schwarts and his team. The surgery took 10 hours. The tumor was described as "sticky' and attached to several nerves leaving him with some nerve damage and paralysis in his throat and one vocal cord. He could not swallow and had to have a PEG tube surgically placed in his stomach. They were unable to remove all of the tumor and left a small piece on his brain stem. Type 2 meningiomas are benign but they do continue to grow and can infiltrate into other tissue. For that reason we are now at Mayo in Rochester,MN for fractionated radiation treatments. He has seven treatments so far. He has started to feel very fatigued and increasingly dizzy. He becomes very anxious at times and is worried about cognitive impairment. Has anyone else experienced a type 2 meningioma and could shed some light on what to expect?

REPLY
4 replies
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Nov 5, 2016
In reply to @kimf "My husband had surgery in July to remove what we thought to be a shwanoma tumor..." + (show)
@kimf

My husband had surgery in July to remove what we thought to be a shwanoma tumor but turned out to be a Type 2 Meningioma. The surgery was done at St Vincents hospital in Los Angeles by Dr Schwarts and his team. The surgery took 10 hours. The tumor was described as "sticky' and attached to several nerves leaving him with some nerve damage and paralysis in his throat and one vocal cord. He could not swallow and had to have a PEG tube surgically placed in his stomach. They were unable to remove all of the tumor and left a small piece on his brain stem. Type 2 meningiomas are benign but they do continue to grow and can infiltrate into other tissue. For that reason we are now at Mayo in Rochester,MN for fractionated radiation treatments. He has seven treatments so far. He has started to feel very fatigued and increasingly dizzy. He becomes very anxious at times and is worried about cognitive impairment. Has anyone else experienced a type 2 meningioma and could shed some light on what to expect?

Jump to this post

Hello kimf, and welcome to Connect. Thank you for taking the time to share you and your husband's experiences with meningioma. I moved your discussion post in to an existing discussion that is taking place on post meningioma surgery. Although some of the other members discussing in this conversation have experienced other symptoms, some may be able to talk about their experiences post-surgery and may be able to provide insight on some of your questions.

I would like you to meet @4catmom whose sister has had meningioma surgery and @lindajean who has had meningioma surgery, along with @pegorr who has had both surgery and radiation. They may be able to answer your questions about the dizziness and fatigue after the meningioma surgery, as well as the worry about cognitive impairment.

@kimf, have you or your husband discussed these concerns and symptoms with your physician?

REPLY
07ram | @07ram | Jan 15, 2017
In reply to @kimf "My husband had surgery in July to remove what we thought to be a shwanoma tumor..." + (show)
@kimf

My husband had surgery in July to remove what we thought to be a shwanoma tumor but turned out to be a Type 2 Meningioma. The surgery was done at St Vincents hospital in Los Angeles by Dr Schwarts and his team. The surgery took 10 hours. The tumor was described as "sticky' and attached to several nerves leaving him with some nerve damage and paralysis in his throat and one vocal cord. He could not swallow and had to have a PEG tube surgically placed in his stomach. They were unable to remove all of the tumor and left a small piece on his brain stem. Type 2 meningiomas are benign but they do continue to grow and can infiltrate into other tissue. For that reason we are now at Mayo in Rochester,MN for fractionated radiation treatments. He has seven treatments so far. He has started to feel very fatigued and increasingly dizzy. He becomes very anxious at times and is worried about cognitive impairment. Has anyone else experienced a type 2 meningioma and could shed some light on what to expect?

Jump to this post

I just joined mayo connect right now, I also had a meningioma removed on apr. 29 2015, it was the size of a ping pong ball. The neurosurgeon left/overlooked a small piece about 7mm in size. After removal it was exsmined and it was a type2 meningioma. The same neurosurgeon refused to operate on small tumor because it was behind my right eye, next to my optic nerve and recommended radiation. I had cyberknife on jan 2016. Now I have consulted a neurosurgeon in MD Anderson but he said to wait and see if the cyberknife treatment stops growth of tumor. I am here looking for answers/help in managing my grade2 meningioma or any body that has used alternative treatments or natural supplements that stop growth of meningiomas

REPLY
pegorr | @pegorr | Jan 15, 2017
In reply to @kimf "My husband had surgery in July to remove what we thought to be a shwanoma tumor..." + (show)
@kimf

My husband had surgery in July to remove what we thought to be a shwanoma tumor but turned out to be a Type 2 Meningioma. The surgery was done at St Vincents hospital in Los Angeles by Dr Schwarts and his team. The surgery took 10 hours. The tumor was described as "sticky' and attached to several nerves leaving him with some nerve damage and paralysis in his throat and one vocal cord. He could not swallow and had to have a PEG tube surgically placed in his stomach. They were unable to remove all of the tumor and left a small piece on his brain stem. Type 2 meningiomas are benign but they do continue to grow and can infiltrate into other tissue. For that reason we are now at Mayo in Rochester,MN for fractionated radiation treatments. He has seven treatments so far. He has started to feel very fatigued and increasingly dizzy. He becomes very anxious at times and is worried about cognitive impairment. Has anyone else experienced a type 2 meningioma and could shed some light on what to expect?

Jump to this post

I have also had cyberknife radiation on tumor laying on my optic nerve and it has stopped the growth, and I still have relatively good eyesight. I am getting cyberknife on one now on the left side, and I'm sure it will be stopped as well. I haven't heard of alternative treatments or supplements. I do know it's difficult knowing there is something up there, but not to have personal control over it. My neuro is conservative in his treatments, although I have had 2 craniotomies. I believe their main concern is our quality of life, and I'm hoping you are doing well and able to enjoy each day to the fullest. peg

REPLY
07ram | @07ram | Jan 16, 2017
In reply to @kimf "My husband had surgery in July to remove what we thought to be a shwanoma tumor..." + (show)
@kimf

My husband had surgery in July to remove what we thought to be a shwanoma tumor but turned out to be a Type 2 Meningioma. The surgery was done at St Vincents hospital in Los Angeles by Dr Schwarts and his team. The surgery took 10 hours. The tumor was described as "sticky' and attached to several nerves leaving him with some nerve damage and paralysis in his throat and one vocal cord. He could not swallow and had to have a PEG tube surgically placed in his stomach. They were unable to remove all of the tumor and left a small piece on his brain stem. Type 2 meningiomas are benign but they do continue to grow and can infiltrate into other tissue. For that reason we are now at Mayo in Rochester,MN for fractionated radiation treatments. He has seven treatments so far. He has started to feel very fatigued and increasingly dizzy. He becomes very anxious at times and is worried about cognitive impairment. Has anyone else experienced a type 2 meningioma and could shed some light on what to expect?

Jump to this post

<br><br><br><br><br><br><br>my neurosurgeon at MD Anderson says he can operate/remove small tumor but he says that he thinks is better to wait and see if the cyberknife would stop its growth. he told me he would approach/reach tumor from the side of my eye and he doesn't need to do<br> craneotomy. i still feel pressure but overall my eyesight is 20/20 and i have some inflamation on my right eye, i am ok. thanks for responding<br><br><br><br><br>

REPLY
View MoreView Less
Please sign in or register to post a reply.