My husband had very small amounts of blood initially but no other symptoms with his muscle invasive aggressive bladder cancer. After initial surgery to remove part of bladder (because the tumor was in a little pocket like diverticulum off of the bladder) He had chemo but it returned and had it removed via turbt procedure, then a trial of BCG infusions after that but while on maintenance infusions, it returned again. He was tired of all the procedures and elected to have a total cystectomy and neobladder creation. a long 6 week recovery from that big surgery, but he is content with the results and has been cancer free for 3 years. He is restricted on how much weight he can lift, but that is due to incisional hernia repair. He also must catheterize 2-3 times a day to fully empty the neobladder. I have noted patients on Connect who will continue for years doing turbt procedures to control recurrences, but that is usually with a less aggressive form of bladder cancer. You will need more information to learn about your potential tumor. Please share with your family. They want to support you and help as they can through this journey.

I only had a slight pinkish color until about 3 weeks prior to my scheduled appointment with the urologist. Then I did have a blood clot and lots of blood one evening. The next morning there was no color at all in my urine. It was as if it hadn't happened.

I originally went to my primary care doctor thinking I had a UTI but
I didn't. She said I had been showing microscopic blood for years so I should get it checked out. (She had never mentioned it prior.) I made an appointment in late May and the urologist was very concerned even as we spoke about it.