Meralgia Paresthetica

Posted by steeldove @steeldove, Oct 12, 2020

Has anyone else in the group been diagnosed with meralgia paresthetica? Meralgia paresthetica is a condition characterized by tingling, numbness and burning pain in the outer part of your thigh. The condition is caused by compression of the lateral femoral cutaneous nerve, which supplies sensation to your upper leg.Jan 16, 2020

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denisefraser | @denisefraser | Oct 3, 2024

In reply to @hw43 "I’ve been diagnosed with trigeminal neuropathy, the most painful experience I’ve ever had. Came on suddenly...." + (show)

Hi there,
Yes I have recently been diagnosed with trigeminal neuropathy from a wisdom tooth extraction that should have never happened. This was May 10th of this year.
The most excruciating pain I have ever experienced. I had been on lyrica for foot neuropathy, so the first treatment was to increase it and see if it helped. I maxed out at 600mg 3 weeks ago. I had a few days of relief then breakthrough pain. My oral pain specialist and family doctor have been working together. I have been decreasing the lyrica dose for the last week. Tomorrow is the first day that I am introducing trileptal.
Trigeminal neuropathy as you know , is constant pain. I have it at the extraction siteon the bottom left. Sometimes my teeth hurt, jaw hurts.
I am actually booked for an MRI in 2 weeks that will be of the trigemenal nerve in the mandible. This is to be done with contrast. The radiologist is basically a neuro radiologist. The point of this is to see what actually happened. How much visual damage? Is it cut?
I want to know. It doesn't change what I am dealing with, but I want to know. Trigeminal neuropathy is not a candidate for gamma knife or ablation. This from a top neurosurgeon who stated he couldn't help me as this is not neuralgia. I am praying the trileptal works. Not excited to put heavy drugs in my body, but I want my life back and to have relief from this pain. Will keep you posted. Lots of prayers and faith 🙏

redrubies5000 | @redrubies5000 | 6 days ago

Greetings,

Yes I have this condition in my left leg currently with symptoms possibly developing in the right as well. Currently, I am pending a PNS Trial and have had a nerve block in that area with no success. I currently take Gabapentin 1500mg a day. Along with the numbness I have pain in the left leg of the affected area. The last step in treatment is surgery if the PNS is not successful. I’ve had the condition since July 2024.

melindaheim | @melindaheim | 5 days ago

Good morning,
I was diagnosed with Meralgia Paresthetica about 30 years ago. It began after I spent too many hours sitting cross-legged or "Indian style" while going to school. I underwent a lateral femoral cutaneous nerve clipping about 17 years ago, and it has provided significant relief. The pain has not totally dissipated but is now tolerable. The surgery created an area of numbness along the lateral thigh and has not interfered with my lifestyle at all. I continue to take Pregabalin 75 mg at night and increase the dose intermittently for flares. A local apothecary-prepared topical compound of Lidocaine, Flexeril, and gabapentin has also been helpful. Lidoderm patches have been helpful but, prior to surgery, caused a great deal of pain in removing them. I stay away from tight-fitting clothes and am careful not to cause increased pressure on the lower back/buttocks and my lateral thigh related to body positioning. Hopefully, this information will be helpful for other folks.