Are you getting your care/treatment at Mayo? I am in Austin, TX, but flew to Mayo JAX for a second opinion. I am so glad I did. My diagnosis was also Grade 0 (DCIS is contained and has not spread). HR+ (E & P) . Meaning positive for being Estrogen and Progesterone fed. I was also HER2 negative.
Your biopsy report, which you can access on your patient portal, will give you other info, such as size and shape, clustered, group, distorted, etc.
I was diagnosed May of 2024. I had a routine mammo, then a diagnostic due to suspicious area. Then a mammo guided biopsy. Then I had an MRI guided biopsy as well as an US guided biopsy. In my case, I chose DMX (Double Mastectomy) with AFC (Aesthetic Flat Closure). I am 58 and my breasts do not define me. I wanted my recurrence rate to be as low as possible. I wanted ONE surgery and be done. I've read horror stories about implant illness and also having to have the implants replaced every 10 years or so. A good friend had DIEP Flap. She is happy, but I am not interested in having a tummy tuck and going through 10 hours of surgery and then follow up surgery. There is a Goldilocks procedure and lumpectomy as other options.
The questions I would ask are:
What is my chance of recurrence?
Do you have a family history? (I do not)
Do you carry the BRCA gene? (I do not)
What are my treatment options? Surgery? if so, type? Radiation? Chemo? Tamoxifen or other drugs? For me, no radiation of chemo. I turned down Tamoxifen.
Lymph node removal? I had sentinel nodes removed on both sides during my DMX.
My recovery was quick and easy and pretty much painless. I did have my surgery at Mayo in JAX.
Biggest piece of advice, breath. There is also a book I highly recommend by Dr Susan Love, The Breast Book. So full of information.
Remember, DCIS is CONTAINED.
Again, what does your bioipsy report actually say? This gives alot more input.
Thank you so much for this information, I have not seen nor is it on my portal yet the biopsy results. Not thrilled about that and do not know why. I am 68 but not sure I want a double mastectomy.