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Thyroglobulin rising post-thyroidectomy

Thyroid Cancer | Last Active: 2 days ago | Replies (10)

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@revrose

I can't believe I forgot to post that info originally. Geesh.

I was diagnosed with papillary thyroid cancer, which was confirmed after the total thyroidectomy. They removed dozens of the lymph nodes around there as well, and a few of them they removed had metastatic thyroid cells. (I can't remember the official wording.)

After the surgery I did not have further radiation treatment or anything. Just the Synthroid stuff since then. But my thyroglobulin levels have been steadily increasing over the past several months. I only got concerned really because my Dr said she wanted a neck ultrasound (not scary) and maybe to put me on radioactive iodine (kind of scary).

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Replies to "I can't believe I forgot to post that info originally. Geesh. I was diagnosed with papillary..."

Hi there! Hmm, so even though you had cancer in your lymph nodes you were never offered to have a RAI scan/picture taken? I'm not talking about having RAI ablation/Radioactive iodine treatment therapy just RAI picture taken. You think for some it would be a no brainer to offer this as in my loved one's case and possibly yours. I'm kind of having a hard time trusting what medical professionals say. My loved one's surgical pathology report said a positive margin was identified. Now today, we get a call after we somewhat bombarded them at post-op visit with questions and knowledge we informed ourselves with along with inquiries we had about the positive margin which is now being called "not a true margin" 😒 . At post-op visit with the surgeon, we were told this Mon. he would meet with a team to discuss their case/treatment. I was under the impression treatment plan may came about from that meeting, but instead today we get a call regarding the margin status which they changed as mentioned above to "not a true margin" Hmm, seems a little off to me and a possibly a more negative favorable margin win for them. At post op appt., I had asked can't you go back to try and achieve a negative margin. He explained as to why he cannot go back to the positive incision site to extract more tissue. Now all of a sudden it's a gane changer as far as positive margin. Hmm. You think a scan would had been offered to back up their so called new margin status. Now you can n understand my trust issue.