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@loribmt

Hi Kat! Reading through your reply just now, I’m wondering if the medication your doctor was referring to is Ursodiol. It’s used as a prophylactic drug against liver/gall bladder damage after a bone marrow transplant.
I just want to make sure I’m reading your message correctly about the Acyclovir. It looks like there was a misunderstanding about upping the dosage of that medication. Don’t increase Acyclovir to 3 pills daily without talking to your doctor/NP. I suspect he thought you were still taking Ursodiol and that he’d have you up the dosage on that medication for your liver. I hope you get some clarification before changing your dosages.
I was on Ursodiol for quite a long time, as well as a drug similar to Acyclovir. I took Valacyclovir instead because the Acyclovir affected my liver.

Some patients don’t have any discernible gvhd symptoms. Your bone marrow biopsy, peripheral smear and your chimeric tests will be important as verification of your transplant status. As long as there’s an underlying reaction taking place where your new donor cells are at work protecting you against a relapse of MDS that’s a good indication of a GVL (graft vs leukemia) reaction…which is the goal.
You’re doing so well, Miss Kat. No fretting at this point! I have faith that your biopsy will come out looking impressive. ☺️.
Stay safe from those terrible fires! It’s awful that one of your doctor’s patients lost their home because of that! I can’t even imagine…

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Replies to "Hi Kat! Reading through your reply just now, I’m wondering if the medication your doctor was..."

Lori,

Yes, it is Ursodiol. I am taking it morning/mid/evening. This time i am taking all three pills. Not forgetting the middle one as i did when i was taking it before. My Dr did forget he took me off it.
Yes, the Acyclovir is still am/pm. I have not changed the dose on that.
I truly hope because in most ways i feel great, my next BMB and all its results will be positive. Ultimately, whatever the results, I know my DR. and the transplant team will be ready to assist with anything that may come up.
The fire is 25 minutes from me and both of those areas are places where people i know lived and places i enjoyed visiting. Eaton is near Monrovia where my brother lives. I have been in Alta Dena many times. All of it is so sad. There was nothing any of them could have done to save their homes. Nothing. It may be a sparked Electric line that started it.