It has been a while on this thread. I had my 1-month appointment follow-up
Friday the 10th. Blood pressure 110/71. My white cells went back up. Talking with my sister last month i told her i felt slightly like i had a cold so maybe that caused it. For the last month i have worn a mask most places and
I walked 5-6 miles every day. Drank my 80 plus ozs of water and kept my creatinine at .81. Yet, looks like my liver enzymes went up a bit. Oddly, the doctor asked me how many of this one pill i was taking and i said 2. he said take three. The odd thing is the pill he spoke about for the live/gallbladder i stopped months ago. It was not on my list anymore. I was talking about the pill Acyclovir- An antiviral drug-. It slows the growth and spread of the herpes virus in the body. Acyclovir will not cure herpes, but it can lessen the symptoms of the infection.
That one i take twice a day. AH ha!! This did not come to me until i left. I added it to the portal to let him know. Maybe this pill will help. I am going back this week for a blood test. I never took that pill right the months i took it. I seldom remembered the midday pill. This time I will.
The DR. was an hour late. I was bugged. When he came in, I had learned his regular nurse was out and he had a floater nurse. Plus, he had a patient before me that had just lost his home in one of the fires. I think he said it was his transplant patient 2.5 years down the road of recovery. Sometimes he is hard to hear.
He made notes in my chart. I said i am glad something was not right. He did say he would like me to have some GVHD. Well, it all just reminded me one more time that I am a transplant patient. I had my transplant April 9, 2024. To all of you. Sometimes it is hard for me to believe that i had breast cancer in 2021 and MDS in late 2023. I do not wish gvhd symptoms. I had asked the team from transplant research what if i do not have gvhd? I was told that some people do not.
Lori mentioned things just will happen. My next BMB is not for 3 months. That will let me know if i remain all donor.....
Take each day and add laughter and good times. Drink water (half your body weight in ozs) and exercise.