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DiscussionNew member looking for advice on doctors and navigating illness
MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (27)Comment receiving replies
Replies to "Thank you all for your informative posts! I'm impressed with how courageous so many of you..."
I am curious about whether the CT scans and bronchoscope showed any evidence other lung damage or infection? If so, it is quite possibly time to seek out a pulmonologist knowledgeable in treating bronchiectasis, aspergillus and the other infections you may be prone to.
In addition to nebbing as needed, airway clearance I one of the pillars of staying healthy when you have bronchiectasis. The fact that they haven't started you on airway clearance suggests your current docs are maybe not so familiar with it - not surprising because in spite of all the discussion here, it is a quite rare disease and often goes unrecognized for years.
I'm glad you are feeling a little better. Have you also been told you have MAC, MAI or pseudomonas?
Hi. I agree there are a lot of courageous people on here, and I think you’re one of them.
You’re not a wimp. It’s normal to be scared. It sounds like you’re forging ahead in spite of it all and are evidently a strong person given all that you’ve been through. Not to mention, you’re seeking help and I think that is very brave.
Since I’m new to all this too, I think others might have more helpful responses, but I’ll add my 2 cents.
My local pulmonologist has me on albuterol sulfate 2.5 mg. I think an allergy test could be helpful. I have had mixed results with these tests. I took my first one probably more than 10 years ago and came up with all sorts of allergies. It was a scratch test. The one I took last year when I started out on this journey showed absolutely no allergies. I did both scratch and blood. Take that for what it’s worth. There may be other tests out there that are more informative/reliable.
Good luck as you go forward, and I hope you continue to see improvements and keep exacerbations at bay.