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← Return to albuterol/levalbuterol inhalation solutions daily use long term
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albuterol/levalbuterol inhalation solutions daily use long term
MAC & Bronchiectasis | Last Active: 6 days ago | Replies (7)Comment receiving replies
Ah, Sue, I am so happy for you that you handle your condition so well. Only saline once or twice a week and airway clearance once a day? That sounds almost like a normal life. After this exacerbation, I am so afraid to catch again. So I am still doing saline twice a day. Even though I don't bring up much mucus any more. Thank you for sharing your successful story.
I hope you continue to thrive!
Ling
Replies to "Ah, Sue, I am so happy for you that you handle your condition so well. Only..."
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Mine was a very gradual & cautious taper - 3 months healthy I dropped back to once a day saline, twice a day clearance.
After no exacerbation for 2 more months, I skipped every 4th day with saline, still twice a day clearance (one after neb, one after exercise.) After a few more months, I dropped the second neb. Then gradually reduced to twice a week nebs.
Each of these changes was okayed by my pulmo, with the understanding I would go back to a full schedule for any exacerbation.
In December, we dropped to twice daily Breyna, 1-2 nebs per week and once a day clearance. So far, so good. Since January of 2023, I have had 2 courses of Prednisone and one of antibiotics.
If you are fortunate enough to have stable Bronchiectasis, no MAC and no illness, it is a wonderful feeling to (cautiously) relax.
Here are the things I DO NOT RELAX - eat well, get proper rest, stay away from sick people, mask at the doctor's office and in crowds, get my vaccinations, avoid indoor pools and spas, use HEPA filters and change them ahead of schedule, and jump on ANY hint of illness within 24 hours. I also use my .2 micron filters, drink filtered or spring water and sanitize/sterilize my equipment faithfully.