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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 15 hours ago | Replies (441)

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@uswpres1

My symptoms are constant pain in my lower back, burning sensation down both legs especially prevalent in feet. My feet sometimes feel like they’re going to break with every step. I have stabbing feeling in thigh muscles especially my left side along with burning, aching in buttocks again more so on left side. The hands issue started a couple months ago. MRI was done on my cervical spine last week and I meet with neurologist next month for follow up and nerve conduction test. She obviously wants to rule out neck issue. Again she doesn’t feel AA can travel up spine and out to upper extremities. Five months ago when first diagnosed I was put on pain management consisting of gabapentine, duloxitine, Tizanadine, Baclofin and, last month, Tramadol. Still in constant pain.

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Replies to "My symptoms are constant pain in my lower back, burning sensation down both legs especially prevalent..."

Hi Archie Here-

Thanks for responding so quickly. Your symptoms are consistent with my experience and those of many of the folks online. You seem to have a good understanding of what you’re being treated for and why. How did you symptoms start and when? Also, what major procedure have you had that you consider contributed to your Arachnoiditis. For example, I have had AA since 1978 and it came on after 2 laminectomies, an L3-5 fusion, and multiple Myelograms with OIL-BASED pantopaque (contrast) fluid. I was allergic to it. But also scaring in the spinal cord from surgery as well as blood on the surgical field all contributed in my case.
How did it happen for you? Who made the diagnosis? Thanks for responding. Archie.