Hi martamarie11. I'm 79 and had hysterectomy at age 40 due to endometrosis. Was diagnosed 30 plus years ago with oral LP but found out it was also affecting my vaginal area. Three years ago began with a vulva dermatologist and she placed me on alternating nights applying clobetasol and estradiol. It helped but not relieved 100%. A few months ago I began seeing a gyno/urologist as it was difficult to pass urine--at all. This past week this doctor performed labial adhesion removal. He said I would have to use estradiol every night for the rest of my life. He said I could "do whatever I wanted to about the clobetasol." What I think I'll do is to use clobetasol twice a week until I see my regular dermatologist and see what she thinks. I don't think it is necessary to go back to the vulva dermatologist (who is 90 miles away) unless my local dermatologist thinks I should do so. I have been prescribed tacrolimus 0.1 that I apply to LP sites on other areas of my body--not on vaginal area. These spots pop up everywhere. It does have to be issued from a specialty pharmacy so that's why the cost is so high. I have good insurance so it's doable. for me. It does sound like you've got a lot of autommune issues going on. Pray things get better. Faye