1. < Prostate Cancer

Any experiences with HIFU localized ablation for prostate cancer?

Posted by jfgunion @jfgunion, Jul 6, 2022

I am interested in anyone who has had this treatment for well-localized cancer in the prostate and what their experience was/is.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

buzzliteyear | @buzzliteyear | Jan 11 2:47pm
In reply to @colleenyoung "Hi @buzzliteyear, yes proton therapy is considered SBRT. Here's some info from Mayo Clinic https://www.mayoclinic.org/tests-procedures/sbrt/pyc-20446794#:~:text=Types%20of%20stereotactic%20body%20radiotherapy,that%20are%20near%20vital%20organs. "Types..." + (show)
@colleenyoung

Hi @buzzliteyear, yes proton therapy is considered SBRT. Here's some info from Mayo Clinic https://www.mayoclinic.org/tests-procedures/sbrt/pyc-20446794#:~:text=Types%20of%20stereotactic%20body%20radiotherapy,that%20are%20near%20vital%20organs.

"Types of stereotactic body radiotherapy:
- Linear accelerator, also known as LINAC. LINAC machines use X-rays, also known as photons, to treat tumors.
- Proton beam, also called charged particle. This newer type of stereotactic radiotherapy uses protons to treat tumors over several sessions. Proton beam radiotherapy might be used to treat tumors in parts of the body that have already had radiation therapy. Or they can treat tumors that are near vital organs."

I'm tagging @jimcinak to make sure he sees your question about his experience with proton beam therapy with 5 treatments.

Buzzliteyear, did you opt for radiation?

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Is Proton therapy available in Jacksonville? What other prostate treatments do you offer at the Jacksonville location
Thank you,
Paul

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1 reply
dgbauto | @dgbauto | Jan 12 9:31am
In reply to @wacostello "I had HIFU in Oct 2021 Cancer returned worse in November 2022 And it was $25,000..." + (show)
@wacostello

I had HIFU in Oct 2021
Cancer returned worse in November 2022

And it was $25,000 out of my own pocket

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Similar results here. 66 Yrs old, Had Gleason 7, (4+3) PSA near 14. After Hi-Fu, PSA only dropped and stayed at 8 for about a year. Gradually rising again to 10. Changed Dr., PSMA was ordered and revealed missed treatment areas and cancer returning to Hi-Fu treated as well. Decided on Radiation (28) and ADT treatment (4mths). PSA now 0.03 for nine mths. I believe Hi-Fu is a crap shoot hardly worth the time and pain. Thanks and Good Luck to everyonr

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Moderator
Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @buzzliteyear "Is Proton therapy available in Jacksonville? What other prostate treatments do you offer at the Jacksonville..." + (show)
@buzzliteyear

Is Proton therapy available in Jacksonville? What other prostate treatments do you offer at the Jacksonville location
Thank you,
Paul

Jump to this post

@buzzliteyear, proton beam therapy is currently available at Mayo Clinic in Arizona and Minnesota.

Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction. The Jacksonville, Florida proton beam facility will open in 2026.

If proton beam therapy is recommended by Mayo experts, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

@jc76, can share his experience of coordinating care between Mayo Clinic Jacksonville and getting proton beam therapy.

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