I am suffering with it as well after knee/femur replacement
My DO/Naturopath/homeopath dr recommended that I read "Stepping Out of the Box" book by Dr Traci Patterson
Extremely great detailed book about her journey
She is a Dr that traveled the world trying to get help with this syndrome . Nothing helped..Pharma, injections you name it.
She discusses many natural options accupuncture is the first and many more. She and many of her patients have have had results. It must be put into remission.
It is a brain /body syndrome. I am just at the beginning and accupuncture has helped so far but am now looking for a neuro psychologist. I notice that it fires up when i am stressed and fires up the neurons in my brain. It is very painful and after 6 months..yes it is spreading and frightening. I highly recommend reading this first to guide you to the answers. Most of her patients as well as her personally are in 7-10 years of remission. This is very painful and scary. Best of luck. She has many answers. Like i said, i am just beginning my journey and she clearly explains it ALL xo
Sincerely, Suzette