I am so sorry to read about your pain and your child's suffering. I have seen three neurologists in the past two years for a seizure condition that was well managed until my mother passed in pain. A recent auto accident where I was struck has also put my drug managment and seizure condition into chaos at times. I could not imagine taking care of a child with the seemingly madness of "try this drug and tapering off that drug" and "see you in 3-4 months. "

Here's what I could suggest...can you see a PA or nurse of the physicians team (posted on the website)? Can you schedule a virtual call to establish in the record that the plan is not working and your child is suffering? If you can get the team to go to the dr I have had success managing my condition in a more timely manner. The physicians assistant can change the medication and managment (tapering off of one drug to another is complicated and painful to experience). I had "brain" zaps from a pain medication recently. The dr was 90 days out for appointments. I had a virtual visit with his PA (presribed new med levels and it's working) and I have the neurologist virtually in two weeks now. Virtual might not be the best level of service but getting in front of the team can get you a more timely appoinment.

If the phyiscian (neurologist) does not have a team (PA, case workers) to support the strained practice maybe it's time for a new dr or second opinion. I would recommend a team approach when screening for a childs seizure condition. All the best to you and your child.