← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@kmn1957

Hi I'm new here so not sure where to post a comment. So I'll do it here since have some of the symptoms I've had for quite awhile is frequent headaches/ and migraines for at least 2 years and was getting progressively worse. Never lost any eyesight, but have a swollen temporal artery just noticed a few days ago. So went in to clinic, they did a blood test for c- reactive protein. And was elevated. So put on prednisone 60 mg. Is it possible to have this and not have loss of eyesight and other symptoms? I'm confused, it sounds like for most people symptoms come on suddenly? With me, I think my symptoms were gradual over a couple years. But was getting worse. I have memory issues and brain fog really bad. So it's hard to put together when all my symptoms started. I seem to have most of my issues on my right side of my face, that's where most of my headaches stem, plus tinnitus and sudden hearing loss. Fatigue is really bad and shortness of breath. I'm just trying to figure this all out. Been going to the doctor quite often looking for answers the last 2 years. Had stress tests for heart issues, pain all over. At times, the pain seems to travel and affect other areas. Have ankylosing spondylitis. So many of these symptoms seem to overlap. But it's autoimmune in guessing.

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Replies to "Hi I'm new here so not sure where to post a comment. So I'll do it..."

When you say pain all over, what do you mean? I had PMR (undiagnosed) starting about 7 months before I started having symptoms of temporal arteritis. The PMR caused pain and stiffness in my shoulders, neck, and one knee. I also had some brain fog from the PMR. A lot of people with temporal arteritis also have PMR. My temporal arteritis symptoms were quite a bit different from yours. I had several episodes of temporary vision loss in one eye, night sweats, low grade fever, pain in my face and scalp, and a lot of fatigue in my jaw muscles. I never had headaches, but I think the majority of people with temporal arteritis do have very painful headaches. Has the prednisone helped you to feel better, or has it not had enough time yet to work?