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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Jan 30 2:29am | Replies (450)
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@uswpres1

I have been diagnosed with AA and trying to learn what I can about the condition as my attending physicians know little more than I presently do. It seems I have all the typical symptoms and have been put on pain management. The last couple months my hands, especially my two index finger’s, have been hurting and constantly sore feeling. My neurologist feels that this can’t be caused from AA since the diagnosed area is around 3rd and 4th lumbar vertebrae and she doesn’t feel it can travel up the spine and out to upper limbs. Curious if anyone has experienced similar issues.

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Replies to "I have been diagnosed with AA and trying to learn what I can about the condition..."
archie2 | @archie2 | Jan 12 11:22am

Hi USWPRes1– Archie here—

You ask some interesting questions, and the answers can be as unique as each patient. You didn’t mention what symptoms you do have (and where) and this would help immensely in trying to help answer your questions. Welcome to the group—if you’re here we all know why, but please help us know you. A review of earlier messages will help you understand what others in the group are experiencing.. Look forward to hearing back soon.
Best, Archie

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nitecreate | @nitecreate | Jan 22 10:05am

WOW, the pain in my right hand is unbelievable. I thought I might be the only one having this.
I was diagnosed with Arachnoiditis a couple of year ago, but I've had the systems for much longer than that. Epidurals or surgery I have no idea what brought it on. I don't experience a lot of shooting pain, but more of a constant lower back pain that migrates all the way up my spine, if I try to do anything like physical activity or walking. About six months ago my right hand started to really hurt concentrating in two fingers. The pinky and the ring finger. They also lock up on occasions.
I as yet have found a doctor that can even spell "Arachnoiditis" let alone know anything about it. So I rely mainly on the few forums that I can find.
Other than the pain, I too feel like I'm losing my ability to walk. The feeling in my legs also go down both arms. Using a cane when I can, and about to start using a walker. My biggest fear is falling. I've take opioids and just stopped using a 15mg of buprenorphine patch. The patch worked for about a year and then I guess I got use to it and really wasn't very effective. The nice thing about it, was very little side effects compared to taking pills.
I'm scheduled for a second trial of drugs for a pain pump. I turned out to be allergic to morphine. I've read where the pump has a 70/80% success rate for AA? I'm hoping that's true?

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