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New member looking for advice on doctors and navigating illness
MAC & Bronchiectasis | Last Active: 7 hours ago | Replies (23)Comment receiving replies
I was there in November for 5 days just before thanksgiving. They were great. I have had Mac since 2021 and bronchectisis. My treatment plan is amakacin infusion for two months and 4 oral antibiotics go back sometime in April. Hope to start next week. Question has anyone had a picc line. Hope all things go well for you
Replies to "I was there in November for 5 days just before thanksgiving. They were great. I have..."
I had a picc line for Amikaicin for 8 weeks (4 weeks before surgery, 4 weeks after). I dreaded it, but actually I had no problem (you have to watch for signs of infection). I chose to go to an infusion center rather than do it myself at home. Much preferred that, as nurses were always looking at it and flushing it etc. Good luck!
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During that time from 2021 to before your visit to NJH did you ever have an uncontrollable coughing spell and other symptoms that fall under a full blown exacerbation for Bronchiectasis/MAC?
Barbara