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Hi Barbara- I was diagnosed with MAC in 2016 by bronchoscopy. I probably had it around 2010 onward because that’s when I noticed I was not feeling well. I was still teaching . I started on the Big 3 in 2016 and was on them until 2022. The Arikayce was added in 2019 I think. In August of 2022 when the MAC was finally gone the gift of aspergillosis was added. I was mostly on Vfend for that. Then came RSV in 2023 and pseudomonas in spring of 2024. Each of these gifts required a hospital holiday because of my compromised immune system and a few complications that kept my wonderful doctors on their toes. I am not the person who got anything from pipes as far as I know. Working in moldy school buildings from 1971 till 2014 is probably the number one reason I started with lung issues. Or because we lived at “chimney” level in Berlin, NH for 15 years while the paper mill was there giving us yellow snow! Just delightful! I do my best to put one foot in front of the other, pray a lot for others in this crazy world of ours , and keep a positive attitude as much as possible . I’m grateful for every day. I would never have chosen any of this for my retirement ( I had plans), but I trust the good God who has the bigger picture. God bless. Irene5
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It may have been the other Irene regarding the p trap pipes.
Regarding school buildings....I believe my immune system was at a low ebb my last year of teaching. It was that year that we came back to a building that had all types of unhealthy materials used for the building remodel. The odors were unbearable let alone the dust they left behind in the classroom which of course Teacher had to clean before the children arrived. So for me that is just one of life's happenings that probably was gradually setting me/my lungs up for what happened...BE., Bronchiectasis.
Yes one foot in front of the other and one good hour, hopefully, to another.
Yes is it so important, the need to think of the bigger picture.
Barbara