← Return to Has anyone had this?
Discussion
MAC & Bronchiectasis | Last Active: Jan 11 5:02pm | Replies (10)
Comment receiving replies
Replies to "Irene- Am I interpreting your post correctly. You had MAC starting in 2016 and didn't go..."
Hi Barbara- I was diagnosed with MAC in 2016 by bronchoscopy. I probably had it around 2010 onward because that’s when I noticed I was not feeling well. I was still teaching . I started on the Big 3 in 2016 and was on them until 2022. The Arikayce was added in 2019 I think. In August of 2022 when the MAC was finally gone the gift of aspergillosis was added. I was mostly on Vfend for that. Then came RSV in 2023 and pseudomonas in spring of 2024. Each of these gifts required a hospital holiday because of my compromised immune system and a few complications that kept my wonderful doctors on their toes. I am not the person who got anything from pipes as far as I know. Working in moldy school buildings from 1971 till 2014 is probably the number one reason I started with lung issues. Or because we lived at “chimney” level in Berlin, NH for 15 years while the paper mill was there giving us yellow snow! Just delightful! I do my best to put one foot in front of the other, pray a lot for others in this crazy world of ours , and keep a positive attitude as much as possible . I’m grateful for every day. I would never have chosen any of this for my retirement ( I had plans), but I trust the good God who has the bigger picture. God bless. Irene5