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Peripheral Neuropathy & Conversation Fatigue?

Neuropathy | Last Active: 3 days ago | Replies (50)

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@dbeshears1

It seems the response that I’ve been settling into over time is “I have good days and bad days, and today is going xxxx”. I usually put something positive in to some degree: ok, not too bad, pretty well, or really great! So I’m being positive but not trying to give them some false impression that everything is good all the time or that I’m getting better, and at the same time hoping we move on to the next subject so I don’t become one of those friends who become depressing or irritable to be around because I’m always talking about bad health. I think very few people really want to hear it and they can’t understand what we’re going through.

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Replies to "It seems the response that I’ve been settling into over time is “I have good days..."

I like your response better than my go to when someone asks me - "Finer than frog's hair, split two ways" 🙃 I do think negativity has a way to send you down a dark hole and I definitely don't want to go there.

Debbie - Well, the good days and bad days, same here as I'm sure many of us with PN experience the same. One neuro doc told me to pace myself. He said you start the day with so much energy, do a lot in the morning, by late afternoon, you'll feel tired. Then, the next day, I notice it is not such a good day which I explain as an off day. I'm learning to pace myself throughout the day and it seems to be helpful, less off days to follow. Dealing with PN is tiring and we need to conserve energy the best we can throughout the day. Ed