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Digestive Health | Last Active: Sep 15 12:01am | Replies (73)
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Hello, my 3 year old has recently been diagnosed with a tortuous/redundant sigmoid colon, after suffering from abdominal pain and distention and pain when passing stools for over a year.
Has anyone had surgery for this (partial colectomy) and was the surgery successful? We need to do something (possibly surgery) as she is suffering daily and it's affecting her quality of life. From what I can see on this adults that have it suffer their whole lives. She has had an ng tube for over a year to increase her fluid intake and give laxatives (which don't really seem to help. Any advice is greatly appreciated 🙏
Replies to "Hello, my 3 year old has recently been diagnosed with a tortuous/redundant sigmoid colon, after suffering..."
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Hello fayeg87 -- I may not have anything to add, but here goes:
1. a study where a child with something that may or may not be similar had a successful surgery:
https://pmc.ncbi.nlm.nih.gov/articles/PMC8320571/
2. Slides which showing what to consider/decision tree from a pediatric gastro:
https://www.uclahealth.org/sites/default/files/documents/Cooperman%20-%20Constipation%20in%20Children%209.9.20.pdf
3. Consider getting a second opinion, if you haven't already. Each Mayo Clinic site has its own specialties. Also, in NYC there is a the HSS, Hospital for Specality Surgery; consider checking them out too. Cross check anyone you find with Castle and Connolly - they truly list some/most of the best MDs; it is not an advertising platform. I use this resource.
4. Surgery would make sense if it were my young child, but I would want to jump through hoops to find a specialist MD that had done a lot of the same surgeries on young children successfully.