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I am one year out with my diagnosis just finished 4th round of PRRT

Neuroendocrine Tumors (NETs) | Last Active: Jan 22 10:13am | Replies (24)
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@vinnie694

Are you getting monthly injections? I started with Lanreotide, that didn’t help the flushing, I was going through flushing 20 - 25 times a day.. Switched to ocreotide, and the flushing has stopped.. I am also scheduled for my 2 nd PRRT Treatment this month… I fully understand the emotional roller coaster..

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Replies to "Are you getting monthly injections? I started with Lanreotide, that didn’t help the flushing, I was..."
nana120 | @nana120 | Jan 12 1:54pm

As I said there have no treatments for the past 5 months. I did have Lanreotide for 8 months. Although I was not having flushing, it did not stop growth of the liver tumor.

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