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Has anyone had this?

MAC & Bronchiectasis | Last Active: Jan 11 5:02pm | Replies (10)
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@irene5

I have had lots of bronchoscopies with lavage since 2016. I am always dry as a bone and couldn’t spit if my life depended on it. I have had MAC ( notice I write have had), aspergillosis, pseudomonas, bronchitis, pneumonia, cancer, and RSV. Having a bronch is good if you can’t give a culture and nothing to worry about I don’t think. My MAC is finally gone after diagnosis in 2016. - treatment with the Big 3 and Arikayce, and then finally gone in 2022. MAC was tough to get rid of - for me. A bronch is a good and safe diagnostic tool. Wishing you well. Irene5

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Replies to "I have had lots of bronchoscopies with lavage since 2016. I am always dry as a..."
km6 | @km6 | Jan 11 8:41am

Many thanks

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blm1007blm1007 | @blm1007blm1007 | Jan 11 8:52am

Irene-
Am I interpreting your post correctly.
You had MAC starting in 2016 and didn't go on antibiotics until approximately 2021....although you made it through aspergillosis, pseudomonas, bronchitis, pneumonia, cancer and RSV. WOW and WOW
Were you on different antibiotics each time???
Were you on antibiotics on and off with all that?
I remember reading that either you or the other Irene thought maybe the pseudomonas was due to cleaning out p trap pipes...was that you??? Between putting boiling hot water, dawn dishwashing detergent and bleach down all the drains I hope my p trap pipes are without much pseudomonas.
A determined survivor you are.
Barbara

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