← Return to Painful Neouropathy (idiopathic) in feet rising up legs

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@celia16

I’m sorry to read about your pain. How do you manage?

My mother has neuropathic pain due to long term Vitamin B12 deficiency which she refuses to treat. She has treated it intermittently, but then stops treatment due to her medication phobia. She is under the belief that she is allergic to all meds and vitamins. She doesn’t absorb normally, so must take injections. So, she won’t get better, since she won’t take the injections. She is also severely deficient in Vitamin D.

She is very vocal about her pain and it makes it difficult for those around her. She’s not interested in pain meds. I would like to get her to a pain clinic, but I’m not sure what they could do for her. I just know I can’t be around a person who is that tortured ling term. It would be different if she tried to treat it.

How have you managed your pain without meds?

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Replies to "I’m sorry to read about your pain. How do you manage? My mother has neuropathic pain..."

Celia, that's horrible for you and horrible for your mother.

I'm curious about the vitamin deficiencies. Presumably, this means she is OK with taking medical tests even if she rejects the recommended treatment. What do you suppose would happen if you arranged for her to get tested for allergies to a suite of vitamins and pain killers? Do you think she might believe the test results?

Do you think she would be willing to see a mental health professional about the medication phobia? Which would pretty much require her to be aware that it actually is a phobia, and believe that medication might work if she could bring herself to try it.

In the meantime, you might want to ask a new question on this site about people's experience managing neuropathy pain without meds. Or even just ask whether a pain clinic can do anything for someone who refuses to take meds, vitamins, or supplements. I suspect, though, that even if the clinic can find something to try (which seems likely, even if it isn't a first-line treatment), insurance may not cover it if she refuses to solve the underlying problem and solving the underlying problem is cheaper. Which brings us back to testing for the allergies she thinks she has -- if she really has them, then insurance might handle it differently.