Hi,
There is little doubt I have forgotten some of my symptoms but they wouldn't change the situation greatly. I'm aware of the other groups as well as Dysautonomia internation web site and touch with them regularly. I know the valve in the throat doesn't close properly but no one seems concerned.
I'm T2 and use insulin as no other oral medication has worked for me. My Bp runs between 147/90 to 240/140 and any point inbetween, this is a direct result of Dysautonomia affect, when medicated it can drop suddenly for no reason. I suspect it also causes similar problems with my glucoes levels not being able to stablise it despite eating the same food and amounts day in and day out, occasionally pushing me into hypo. I'm naturally hyper. Neither my BP or T2 can be treated properly incase Dysautonomia decides to pull it's tricks, fortunately I'm able to tolerate the higher lever of both so the preferance is not to medicate too much just incase. With the last 5 Dr's telling me my high glucoes levels were OK the damage has been done, I regularly run to 18/20 for glucoes. Since I have bothered taking notice I now argue the point that 7/9 is the prescribed max.
In hindsight it would appear that the symptoms have been with me a lot longer than realised and only became apparent through an extreme bout of Campylobacter, which knocked out my kidneys and sent me to the pearly white gates.
I have Autonomic polyneuropathy is the diagnosis with both the main nerve systems compromised in some way or other and the complete digestive system being permanent and seriously compromised. Add to this some fine blood vessel damage in the brain with low Sella level, little wonder I have problems.
Cheers