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Lynch Syndrome Anybody?
Pretty sure my results are saying this. No one can follow up with me because it’s a holiday. Genetic meeting Thursday. Feel like this is worse than getting rectal cancer that I was working on beating here in the future. Chemo to start momentarily after insurance approves. 45yr old
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I was diagnosed with Lynch Syndrome 26 years ago. A colonoscopy at that time when cancerous polyps were removed precipitated the need for genetic testing since numerous paternal relatives had been diagnosed by the Mayo Clinic. Since then I have had two partial collectomys and finally chemo and radiation and APR surgery two years ago. The Mayo has great support for this syndrome and vigilance is crucial. I consider myself very fortunate and hope to remain cancer free. I am 75 and have a good quality of life despite all the treatment. Best of luck to you!
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1 ReactionMy brother and I both diagnosed with Lynch. My brother passed away in 2023 at 78 from kidney cancer. All first cousins on my father's side except one had the mutated gene. Last year I was diagnosed with colon cancer (age 76) and had a colectomy. Fortunately my lymph nodes were clean so no chemo, but on a short leash for continued monitoring. Also, I prostate cancer dx in 2007 but so far so good after prostatectomy followed by radiation and luprone injections.
@alake, I hope you saw the helpful posts from @geno77 and @patsyh. You may also be interested in these discussions related to Lynch syndrome:
- https://connect.mayoclinic.org/search/discussions/?search=lynch%20syndrome
How did your meeting go with the genetic counsellor? Do you have Lynch syndrome? Did you start chemo?
No Lynch, thank the lord. Office staff read my results wrong. Started Chemo on this past Tuesday and it’s rough. I did not see posts u fortunately. Just trying to rest with Chemo start.
Hi,
I found out 5 years ago I have the Lynch gene. I started with brain cancer in my 30s (now remission), and currently have colon rectal cancer (I'll be 53 soon).