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@ecoen

I have just completed one full week at the National Jewish Hospital in Denver and I am so so happy I am here. This hospital specializes in lungs. I feel so fortunate to have found them. I actually found out about them from this site. Mayo's is wonderful but this is all NJH does. I have bronchiectasis, aspergillus and MAC. I have been taking Cresemba for the aspergillus but have been holding off starting on the Big 3 antibiotics for the MAC. NJH is recommending airway clearance (aerobika) with albuteral and 7% saline inhalation plus a big vest that vibrates your chest to help the saline penetrate and help clear the airway. I'm very excited to try this and hope it can possibly keep me off of the antibiotics. I self referred myself. They also diagnosed GERD. I am scheduled for a bronchoscopy and endoscopy for Monday. They are also installing a device in my esophagus that will measure the amount of acid refluxed from my stomach for 4 days. I am also being sent home with sputum test kits and will be sending them samples once/month. I will be coming back here in 3 months for a follow up CT, PFT. Hopefully we will see some big improvement. Good luck to you. Find the experts.

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Replies to "I have just completed one full week at the National Jewish Hospital in Denver and I..."

Yes it is great to have all the tests they can do in such a short time so that a patient will know if there are other problems that are important to test for to know if one has, possibly has, Bronchiectasis or a MAC infection.
Interesting that you mentioned four days of wearing the line and device to measure any, if any, problem related to acid reflux. They just required a 24 hour period for me when I was there. I believe that it would be better to have the line and device in for more than 24 hours.
Hope you get good results.
Enjoy Denver....The Cherry Creek Area where the Marriot Residence Inn is, is lovely and convenient.
Barbara