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I have 3 nueroendocrine tumors in my left lung

Neuroendocrine Tumors (NETs) | Last Active: 5 hours ago | Replies (13)
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@arleighna

Thank you for answering. I'm only two shots in, but my blood sugar has been insane the last week. I've had my lobectomy, done the chemo, then the immunotherapy, and now the hormone therapy. But honestly I feel worse on the lanreotide than the immunotherapy. Do the side effects get better over time? The only thing that is better, I've had next to no flushing.

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Replies to "Thank you for answering. I'm only two shots in, but my blood sugar has been insane..."
pavlina60 | @pavlina60 | 5 hours ago

@arleighna - it gets better with time! My first 6 mo I was in bed for 2 days, nauseated. Now I get tired and slight headache on the day. I also take Zofran 30 min or so before injection. The day of the injection I eat light - crackers and swiss cheese.
Hang in there! There are benefits to Lanreotide!
I also take bitter melon and watch my carbs, and my glucose seems to stay stable (~130 in the morning)

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