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DiscussionCholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Liver Cancer | Last Active: 13 hours ago | Replies (45)Comment receiving replies
Replies to "I was also diagnosed with hilar cholangiocarcinoma in June 2024. In 9 months I still have..."
Deb, this post made me cry. My mother was 64 when diagnosed and she died at 65. She refused chemo because she also had an autoimmune disease (she also just didn’t believe in chemo), but I have been reading more and more success with using the chemo than before. My mother never tested positive for bile duct cancer even though we were told she had it by three major hospitals. Her CA19 levels were elevated though (they went back down after radiation). The bile duct cancer did not really spread, but eventually she died of kidney failure. She had many pre-existing conditions, but she required many bile ducts stents that essentially led to so many organs not working (she of course, had many pre-existing conditions that ultimately led to her poor prognosis. I am rambling on, but basically what I want to say is do the chemo and fight. If you have children, write down all the family recipes. Say the things you want to say. We cared for my mother every day, but we never wanted to face the reality that she might die so there were many things I wish I had asked. We were waiting on God to provide a miracle that never came, but it doesn’t mean that it can’t happen for somebody else. I will keep you in my prayers.