1. < Neuropathy

Idiopathic small fiber PN

Posted by pat1010 @pat1010, Jan 10 9:46am

Has anyone had pins and needles all over their bodies as symptoms of PN? I mean all over? I had for several months.

Is anyone aware of sexual dysfunction with PN other than diabetic related?

I have had PN for 18 months and I am 70. No medications yet but symptoms are progressing in my feet. I have pain in my hands but not burning pain. It may be arthritis. I am trying to avoid taking medication at this point.

I am a very active individual who exercises vigorously every day. No loss of balance at this point. I am doing the following:
- Acupuncture (although doesn’t seem to be helping)
- Toe yoga and other foot exercises
- Nooro foot massager - doesn’t cure but stimulates
- Alpha Lipoic Acid - may be effective for diabetic PN but I think it is helping me - may be a placebo effect!
- Use of mild compression socks -takes away the tingling feeling in the legs
- Keep moving

Any other suggestions are greatly appreciated.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Jan 10 11:19am

Hello @pat1010, Welcome to Connect I'm sure you are not alone with the symptoms of a tingling all over. Mine is mostly numbness in my feet and legs with some tingling but pretty hard to tell if the tingling is because I have to wear medical grade compression socks for lymphedema in my legs. There have been a lot of members who have shared what has helped with their neuropathy. Here's a link that lists the discussions and comments - https://connect.mayoclinic.org/search/?search=small+fiber+neuropathy+what+helps.

It's great to hear you are staying active and exercising. If you haven't already seen the Foundation for Peripheral Neuropathy, they have a wealth of information including research, webinars, complementary and alternative treatments and living better with neuropathy - https://www.foundationforpn.org/.

REPLY
1 reply
pat1010 | @pat1010 | Jan 10 11:42am
In reply to @johnbishop "Hello @pat1010, Welcome to Connect I'm sure you are not alone with the symptoms of a..." + (show)
@johnbishop

Hello @pat1010, Welcome to Connect I'm sure you are not alone with the symptoms of a tingling all over. Mine is mostly numbness in my feet and legs with some tingling but pretty hard to tell if the tingling is because I have to wear medical grade compression socks for lymphedema in my legs. There have been a lot of members who have shared what has helped with their neuropathy. Here's a link that lists the discussions and comments - https://connect.mayoclinic.org/search/?search=small+fiber+neuropathy+what+helps.

It's great to hear you are staying active and exercising. If you haven't already seen the Foundation for Peripheral Neuropathy, they have a wealth of information including research, webinars, complementary and alternative treatments and living better with neuropathy - https://www.foundationforpn.org/.

Jump to this post

Thank you for your comments and time. The pins and needles were not tingling but very sharp, almost breath-taking jolts that attacked my entire body over a several months.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jan 10 1:07pm
In reply to @pat1010 "Thank you for your comments and time. The pins and needles were not tingling but very..." + (show)
@pat1010

Thank you for your comments and time. The pins and needles were not tingling but very sharp, almost breath-taking jolts that attacked my entire body over a several months.

Jump to this post

Here's a search that lists members who have mentioned electric type shocks in the body - https://connect.mayoclinic.org/search/?search=electric+shocks.

REPLY
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