I was diagnosed with PMR by an Internist after 30 specialists could not determine the cause of my muscle and joint pains in my legs and hip. I have OA but that was not considered to be the primary cause of all of my severe pain. I have had x-rays and a plethora of lab work; I have been seen by 3 rheumatologists-orthopedists-neurologists-infectious disease-and two vascular doctors. The vascular team has NOW run multiple tests and states the swelling in my legs is not vascular but lymph edema. No one knows the cause of the lymph edema. Abdominal U/S was normal. How do I know if I have PMR and can PMR cause lymph edema. The vascular doctor told my internist to stop the Prednisone. Cardiac testing is normal. Liver and kidney are normal. I am in severe pain. Any suggestions for pain control. The orthopods don't want to have a hip replacement with the severe lymph edema causing terrible pain in both legs; muscles; joints; and knees.
Hope someone has a suggestion. On opioids for pain with minimal help. Now going to PT for lymph edema treatments which are not doing much.