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Prednisone for radiation pneumonitis

Lung Cancer | Last Active: Jan 12 9:36am | Replies (20)
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@sharonsturdivan

I developed pneumonitis (with shatter glass showing on CD scan) after immunotherapy on Halloween. Doctors finally put me on prednisone 80mg the end of Nov, with step down to almost Christmas. Within days of stopping the wheezing is back. It is worse in the afternoon and evening, ( assuming that might be because I sleep with O2 at night with my cpap). Heading to my pcp today to see what they suggest. My biggest concerns is that this occurred after only one immunotherapy to try to shrink the mass in my lung, to make surgery easier. Now that this is reoccurring, I am not sure if the surgeon will even do the surgery! Scared! What now?

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Replies to "I developed pneumonitis (with shatter glass showing on CD scan) after immunotherapy on Halloween. Doctors finally..."
nanajan26 | @nanajan26 | Jan 10 10:32am

I wasn't a candidate for surgery so did 6 chemotherapy and30 radiation. Put me on Tagrisso & I developed pneumonitis after 6 weeks. Some times the immunotherapy is the problem. It certainly was for me. I sailed through initial treatments so totally unprepared for adverse reaction to Tagrisso

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dougmck | @dougmck | Jan 10 12:00pm

What kind of immunotherapy drug are you taking? As I mentioned below, my oncologst is wanting to start me on keytruda but wants to wait until spring because he's concerned that previous radiation treatment puts me at high risk for pneumonitis (but it's already happened). After reading about so many serious side effects I'm very wary of trying keytruda out, especially because my PD-L1 status is 0. I'm wondering if your pcp will just continue to prescribe prednisone so you can continue the treatment? Please give us an update.

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