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DiscussionChronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 7 hours ago | Replies (7144)Comment receiving replies
Replies to "Hi! I've been a long-time lurker of these boards, I feel it's now time to introduce..."
Sorry, I should have read your post more carefully. Yes, the SCS worked for about 2.5 years, then suddenly stopped. No explanation. I also had the pain pump implanted in 2023. Has never given me an iota of relief. Not trying to steer you away from either one. Just saying that they are not always the answer. I don't know. I am in severe chronic pain. Several drugs help a bit, but not significantly. If I could get opioids, I would likely go for it. We, who are in pain, will sometimes be willing to grasp at any straw to help us. Good luck!
Hi Archie here—
Welcome from one of your fellow sufferers! Your situation is indeed complex but not intractable. As you presented, there are obvious regional deficits. Let me share my experience. I was on huge Oral doses of Oxy and Dilaudid, even morphine, for horrible low back and bilateral leg pain. I had no quality of life, constant pain, etc. Then I walked into a pain management Dr who said „You know, you’re a perfect candidate for an intrathecal pump .“ I have to say, that since the pump implant (Medtronic 40) I haven’t been pain free, but I haven’t taken oral pain meds since 2007. I’m due for a Boston Scientific SCS implant trial this coming Tuesday , so I’ll report back to folks how that helps. I KEEP A JOURNAL of pain levels and life events, I see an analyst for mental health, and I try to read and stay informed about developments in my problem area. Good luck- be your own best advocate—you are very articulate, so don’t let that slow you down, and assemble the best treatment team you can.
Best, Archie
Man, if it weren't for bad luck, you wouldn't have any luck at all. I had L5-S1 fusion back in 2017 to supposedly fix spondylolithesis. Not a pleasant experience. The surgery was supposed to help with my lower back pain due to a ski fall. It did NOT help with the pain. Perhaps it stabilized my spine, but I will never know. It has been said that spinal fusions are one of the biggest cash cows for orthopedic surgeons. Who knows? I thought that I had seen a lot of docs, but you are the clear winner. I wish I could wave my magic wand and do away with all the pain that all us who are dealing with this terrible issue.
Have you had a trial of a spinal cord stimulator? It can help a lot of folks. You do the trial for 5-7 days to see if it will help with the pain. If you get at least a 50% reduction, then the permanent implant can be considered. Wish you well in the coming year.